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  1. Johnd1983

    Patient Registry

    Just registered. Hopefully it is still running... Thanks. John.
  2. Johnd1983

    New found success with Verapamil - please read

    Hi, great post and similar sort of story here - 33 year old male, suffered with CH for ten years or so but it took me a couple of years to realise / be diagnosed due to just not having heard anything about CH previously. I was prescribed Rizatriptan wafers for a while, which did nothing and then I came of all prescribed medication and tried psilocybin mushrooms and truffles, which also didn't work. The last two years my cycles have been 'short and sweet', if you can say that, and the pain much less severe but this year the attacks returned in full force so I went to the doctors on Tuesday last week and was prescribed Verapamil (40mg) and advised to take 1 tablet twice a day and return in two weeks. By day three, even at only 80mg per day, I had a day free from any CH attacks. It's now Sunday and I haven't had one single headache... Maybe it's too early to tell what is what in my personal case but fingers crossed, this really does work! PS: chroniccluster252 - I read that constipation was a side effect in the leaflet but personally haven't experienced that. Sorry but hope you get sorted.