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Everything posted by Johnd1983

  1. Yes, same here. I have been doing it anyway and just gave it a shot, it worked, and has done each time since, thankfully but I am still taking verapamil also. I hope you get through your cycle alright mate! All the best to you.
  2. I never tried the cold water therapy...yet anyway!! Only the breathing technique. I am going to keep it up for as long as it works. Just hoping it helps more people on here!
  3. Hi everyone, I hope you're all doing well... I just wanted to share something with you. I have been suffering with clusters now for around 15 years or so and, thankfully, I did not have any cycles during 2020 but they kicked in for me this year on Friday last week (30th April 2021). I was prescribed Verapamil previously, in 2015/16, which has actually worked really well for me in the past but always takes a good few days to take effect - Luckily, I had a supply stored away so I started with them straight away on Friday evening and have been taking them daily, morning a
  4. Hi everyone... I hope everyone is as good as can be! I've been dealing with CH for around 12-13 years now, normally occurring for me between June and September every years. For the past 3 years, I have used Verapamil with amazing success, at a super low, consistent dose. They have ALWAYS worked fine for me, as they did this year but after around 5-6 weeks, I felt a sensation that I haven't felt before. Imagine a CH but without any sensation of pain (I know it sounds strange!), still with all of the pressure build-up - This is what I am experiencing around
  5. Just registered. Hopefully it is still running... Thanks. John.
  6. Hi, great post and similar sort of story here - 33 year old male, suffered with CH for ten years or so but it took me a couple of years to realise / be diagnosed due to just not having heard anything about CH previously. I was prescribed Rizatriptan wafers for a while, which did nothing and then I came of all prescribed medication and tried psilocybin mushrooms and truffles, which also didn't work. The last two years my cycles have been 'short and sweet', if you can say that, and the pain much less severe but this year the attacks returned in full force so I went to the doctors on Tu
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