Bailey

I had covid in April and was at the end of my average 3-year remission period, but it did not trigger a cycle. I did start a cycle this fall instead no cold/covid that I am aware of. That being said, the last 2 of my last 3 cycles occurred immediately following a cold and I also started to wonder if there was a correlation. I recommend including this type of info in your headache journal (store it in the cloud). I fully detail all headaches, treatments, and any changes in daily life at the beginning of a cycle.

Hello, I am in the US and I need some resources to provide to my HR Department regarding use of Portable Oxygen Equipment. During my last cluster cycle, my HR required me to get FLMA and allowed me to store my oxygen at work but required that I, a male, use one of the breastfeeding rooms and leave the portable tank there and get a key from HR to use it. As I was receiving awkward looks from colleagues when accessing one of the two the private room, I did not find this the best place for me and might make some female coworkers uncomfortable. Thankfully most of my headaches are at night and I went into remission soon after. Flash forward 3.5 years and a new cluster cycle, there is a new HR team. I again filed FMLA and was approved. I inquired about bringing in a portable 02 canister (in roller cradle) and told them the history and they said the same setup would likely be used. I suggested alternative treatment areas (not the breastfeeding room), and they stated that I would need to have property management mount it to a wall in a suitable area because if it falls over it could travel up to 40 mph and is a fire hazard. Thankfully, again, my headaches are mostly occurring at 3am (yay me) and I have been able to rely on sumatriptan auto-inject for any daily reoccurrences. I am also only in office 2 days a week and 3 at home, but the thought running out of the shots does give me some anxiety as I have a limited monthly supply. I asked my HR Department if I could just leave the o2 in my car in the parking garage and am awaiting response. I checked with the O2 provider, and they said it was acceptable to leave the tank in my car since it was underground but wouldn't write any sort of approval letter for my HR Department. I guess I don't understand how my o2 tank, in its cradle, with regulator is not safe, but an underground garage full of cars with gas tanks somehow is less dangerous. It is just very frustrating that I am following all the steps, but it is difficult to bring my prescribed o2 canister to work without resistance. I suggested that HR have a written policy on how to handle future oxygen patients access care while in the office. I only need the o2 situationally, but what about a person that needs it every day. If you have any helpful resources, it is appreciated.

Bosco, Bejeeber and CHFather, I use a non-rebreather with reservoir with the 10lpm concentrator and it usually aborts the attack in 10-15 mins for me using...In the past I have just taped over the outlets and exhaled outside of the mask, but I just purchased the rebreather sold on this site to give it a try. It is on the way. My headaches usually come on at 1-3am, and I run for the sober wagon after my very first attack each episode cluster. How many minutes do you usually get out of one tank? I have almost always only used a concentrator and augmented with injectable sumatripitan when not at home.

I got an oxygen concentrator 10lmp and it kept tripping my breaker when turning it off so I asked the provider to replace it. The one they replaced it with sounds very loud and is rattling the plastic casing. Any recommendations on a good 10lpm concentrator? I may ask my insurance to find me another o2 provider.