Clairmon

Thanks @CHfather and @Mordecai ! Can't tell you how much I appreciate your help and being here. Didn't realize you had replied. Meanwhile, I managed to get multiple big M tanks yesterday from Lincare, and the good mask specifically for clusters online. Used it to abort one last night, after some fiddling around with which mouthpiece to use and how to breathe. A total game changer. Seems like it would be easy to go through even one of these big tanks every couple days if you get multiple attacks nightly. I guess if I am in this for the long haul, I should figure out what a demand valve system is. Much to learn...

Mordecai, I am in the same boat as you and the same area. Live near Purcellville in Western Loudon, first time getting a proper diagnosis but third time going through an episode of what are usually monthlong clusters. Maybe we can talk, seems like you would have good specific advice for me? My doctor is willing to prescribe Oxygen but not experienced, I'm his first CH patient, and he doesn't know how to work with an oxygen supplier. Any advice? I am also more than happy to just buy welding or pilot oxygen if someone can give me the link to the right regulator to put on it and reassure me it's fine. Adding insurance paperwork and hoopjumps to something you are highly motivated to get done quickly never seems smart. Appreciate everyone here, this group seems like an amazing resource. I am really going through it right now, and it sucks to know you all are too but is good to share stories and info.