Jump to content

Search the Community

Showing results for tags 'advice'.

More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


  • General
    • General Board
    • ClusterBuster Fund Raising Opportunities
    • Advocacy, Events and Conferences
    • Research & Scientific News

Find results in...

Find results that contain...

Date Created

  • Start


Last Updated

  • Start


Filter by number of...


  • Start





Website URL







Found 2 results

  1. Hi. I've been suffering from CHs for 12years, though remissions last up to two years in between attacks. Attacks last every day, multiple times a day, for up to 2 weeks. Was just diagnosed after years of misdiagnosis (migraine). Looking for advice on: prednisone- just started a 21 day course; O2 - how do you obtain? Insurance won't cover?; sumatriptan- have run through all that insurance will cover now. But I feel like sumatriptan makes it worse/more frequent. Does anyone else get that? Does anyone ever use a hot shower during the attacks? It seems to give me some relief or distraction, hard to say which one. Lastly, those that have suffered for years, does it get worse with age? Do you find any correlation with alcohol as a trigger? I'm 33. Also just looking for some emotional support, I'm glad to have been diagnosed so now I know I'm not alone. - CD
  2. Hi Everyone, I've suffered from all types of headaches for a long time. I'm currently being treated for migraines. However, my headaches often present significant cluster symptoms. My doctors and I are having a hard time diagnosing the type of headaches I'm having and subsequently, how to treat them. I'm already on depakote for my bi-polar II. It doesn't have an effect. I've taken lithium and topiramate for my mental health and those also did not have an effect. I take treximet (sumatriptan and naproxen) as an abortive, and it usually works, but the side effects are miserable. ANY help, feedback, support, questions, or even if you have similar symptoms, would help sooooo much. Also, I don't know if it matters, but I'm a female and 29. These headaches started when I was 19 and have gotten worst since I've aged. I was diagnosed with MDD at 23, and then BPII at 28, but my medications don't seem to affect my headaches. Cluster headache symptoms -Headaches are seasonal and I will typically get 3-5 a week for a 1-2 month period every fall and spring. -During a headache period, headache will occur at the same time every day. Usually in the late afternoon or early morning (4:00 / 5:00 AM). -My left eye (same eye I experience pain) will water to the point that people think I'm crying. -Brutal, excruciating, stabbing pain behind left eye -Nose congestion Migraine symptoms -Headache (stabbing sensation) begins and pain increases over hours. Headaches last for hours until treximet works or I can sleep it off. They last longer than cluster headaches are supposed to (4+ hours) -Sensitivity to light, sounds, and smells -Nausea, diarrhea -Strong desire to lay down ??? Additional random symptoms, triggers, and things that help. -Excessive sweating is a random symptom -Heat and cold help, especially wet washcloths -Sleep and fresh air also help -Alcohol, stuffy rooms, scents, seem to trigger -Muscle tension is also a problem