Search the Community
Showing results for tags 'support'.
Found 1 result
-
Hi. I've been suffering from CHs for 12years, though remissions last up to two years in between attacks. Attacks last every day, multiple times a day, for up to 2 weeks. Was just diagnosed after years of misdiagnosis (migraine). Looking for advice on: prednisone- just started a 21 day course; O2 - how do you obtain? Insurance won't cover?; sumatriptan- have run through all that insurance will cover now. But I feel like sumatriptan makes it worse/more frequent. Does anyone else get that? Does anyone ever use a hot shower during the attacks? It seems to give me some relief or distraction, hard to say which one. Lastly, those that have suffered for years, does it get worse with age? Do you find any correlation with alcohol as a trigger? I'm 33. Also just looking for some emotional support, I'm glad to have been diagnosed so now I know I'm not alone. - CD