Alyssaaaa Posted August 2, 2023 Share Posted August 2, 2023 Hi everyone, I suffer from episodic CH. Over the years I've had a total of two occipital nerve blocks administered by my neurologist, neither included steroids. I guess it was just lidocaine that was injected as my nuero said she doesn't like doing the nerve blocks with steroids. This probably explains why neither procedure provided me more than about 12-24 hour relief. From what I've read online if the nerve block includes the steroids it can offer several days or even weeks of relief. In your experience, have you had an occipital nerve block with steroids? Did it help you? Who administered it, your neurologist or a pain management doctor? Any intel is appreciated, thanks! Quote Link to comment Share on other sites More sharing options...
Cloudy Posted August 2, 2023 Share Posted August 2, 2023 I have had 3 or 4. They were ok for breaking cycle but only for 3 or 4 days. Mine were given by neurologist in Los Angeles. In my experience it’s for those really tough moments in a cycle. 1 Quote Link to comment Share on other sites More sharing options...
Ben Posted August 23, 2023 Share Posted August 23, 2023 Once. it lasted about 6 hours. had numerous Botox injections that day as well. when I told my neurologist,he was dumbfounded. Quote Link to comment Share on other sites More sharing options...
Alyssaaaa Posted August 28, 2023 Author Share Posted August 28, 2023 1 week later update: I received an occipital nerve block which contained lidocaine and dexamethasone (corticosteroid) from the pain management neurologist team at Stanford. The block offered me two full days of relief. Headaches came back on day 3 at my regular pain levels and frequency , they said it could take up to 7 days for the steroids to fully "kick in", but I'm not too hopeful at this point. 2 Quote Link to comment Share on other sites More sharing options...
gegibsonjr Posted September 5, 2023 Share Posted September 5, 2023 @AlyssaaaaI have had 6 of the occipital nerve blocks as you have mentioned. Unfortunately I saw minimal to no relief with any of these - anything past 1-2 days. Like a lot of treatments with CH, your mileage may vary and I always hope for the best. 3 Quote Link to comment Share on other sites More sharing options...
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