New informative Webinar Tomorrow

[number1buster]

WEBINAR

Pain, Not Personality: Why Behavioral Medicine Matters in Cluster Headache Care

Wednesday, April 8 from 7:00-8:00pm Eastern Time

 

In collaboration with Clusterbusters, the Jefferson Headache Center invites you to join an upcoming educational webinar for patients living with cluster headache and those who support them.

 

The session will be presented by Susan McCrea, Licensed Psychologist, who will discuss psychological and coping strategies that may help patients manage the challenges of living with cluster headache. Bob Wold and Joseph McKay from Clusterbusters will share their perspective as patient advocates and share insights from the patient community. Physicians Dr. Young, Dr. Marmura, and Dr. Nahas from the Jefferson Headache Center will also join the discussion.

 

Date: Wednesday, April 8

Time: 7:00–8:00 PM (Eastern Time)

 

How to Register:

Click the registration link below:

https://events.teams.microsoft.com/event/24bb6ffd-b82d-42cc-b970-b1b57c59a880@55a89906-c710-436b-bc44-4c590cb67c4a/registration

 

After registering, you will receive an email with instructions on how to join the webinar.

 

If the link does not open, copy and paste the link into your web browser (such as Chrome, Safari, or Edge).

[FiveofClubs]

Not sure if anyone is checking this thread, but wanted to say Thank You!  to everyone who participated and organized the webinar last week.  I was diagnosed with clusters in 2009 and had them for about 15 year before that.  Failed multiple treatments, some with adverse effects.  I didn't pursue any more treatments or engage with communities when I discovered hard cardio worked as an abortive for me.  I just closed off and focused on that for years, but about 6 months ago I decided to see if anything changed.  I live outside Philly and I'm fortunate to be in the Jefferson system.  I've had my first course of Emgality, anxiously waiting for my second.  

Dr. Mccrea, your description of the pain cycle, or the thought process resonated strongly with my experience.  Joe, your story is both heart breaking and inspiring, thanks for sharing it.  And,  Bob, thanks for creating this space for us.  

Thank you again,