number1buster

Hey guys, First off, many thinks to Denny for all of his great work on this. I love the lyrics (I've been a "lyrics guy" all of my long life). I especially how the lyrics take that well written turn at the end. xBoss thank you for your work on this. Fantastic. As to an album, this may be something that we could build on over time. I've tried putting a Clusterbusters Band together for years. It's been a dream project of mine for,,,,,25 years? It's just always been a difficult thing to do, getting people together. I've tried getting a group together at our conferences. We also did have one very good musician put together an album (wrote all the lyrics and music) and recorded it and we shared it about. This was many years ago. Unfortunately, as happens in our community, he ended up taking his own life shortly after making the recordings. The whole story was devastating to me as we had become very close working with him and his caregiver for several years prior to all of this. Our healthcare system let him down. He also had French citizenship and had to fly back and forth to France to get "free" healthcare. Traveling 5000 miles to see your doctor is not free healthcare but cheaper than our system. Anyway, the recordings were difficult for me to even listen to. None of the songs were as personal as this version you've pulled together. It was more of a version to play while busting to help everyone "feel good" for set and setting. I had also put together a 6 disc set of songs to use during a busting session. Nothing original, just songs I thought would work well during the stages of a 4-5 hour busting session. I just put them on CDs and passed out sets to a lot of friends. So, you can see that music is my safe place. I've noted in my will that my grandson gets my vinyl collection. I've been collecting since 1966-67. Maybe we eventually have a Lyrics contest? Maybe Denny can write an album of lyrics, LOL. So, can we please move forward with this? I don't write lyrics or music and I'm not up on how to use AI for something like this. Here are some of my thoughts. 1. We would need to make sure that we follow copyright laws. 2. I do have some contacts in the music industry. 3. I've played and done some work on CHATgpt. I had one of the paid levels for a time but cancelled the subscription (more of a time issue than a $ issue.) 4. I believe that there may be a better service for this than CHATgpt. Maybe Claude? 5. I am willing to pay for a level of service that would be best to use for this project with whichever program you guys decide is the best. 6. Also, whatever other expenses end up being needed. 7. We have some events coming up that I'd love to introduce this work to our community. 8. If we (you) end up wanting to distribute this, in some way, to the community and our supporters and even "the world" it may end up being quite time consuming for someone. That would be fantastic but we'd possibly need to compensate someone for their time and effort. We have been working on opening up a Clusterbusters store for a long time but it's a lot of work for a non-profit and requires a lot of additional accounting costs. It's possible to add this to a package that we may want to either give away as a special welcome gift to new members, or give away as a prize for our fundraising efforts. I would love to feature this and promote it as much as possible. There are a lot of possibilities and I'd love to hear your ideas and would not want to do anything that would be disrespectful to you guys or the community or a bad look for Clusterbusters. So, I'd take all of your thoughts on moving forward and respect your desires, start to finish. 9. So, if any of you say, "I don't like that idea" then we don't do that. 10. Let me know how I can help. Expenses? I've got it. Contacts, I'm on it. Promotion, CB's got it. Bob Wold

WEBINAR Pain, Not Personality: Why Behavioral Medicine Matters in Cluster Headache Care Wednesday, April 8 from 7:00-8:00pm Eastern Time In collaboration with Clusterbusters, the Jefferson Headache Center invites you to join an upcoming educational webinar for patients living with cluster headache and those who support them. The session will be presented by Susan McCrea, Licensed Psychologist, who will discuss psychological and coping strategies that may help patients manage the challenges of living with cluster headache. Bob Wold and Joseph McKay from Clusterbusters will share their perspective as patient advocates and share insights from the patient community. Physicians Dr. Young, Dr. Marmura, and Dr. Nahas from the Jefferson Headache Center will also join the discussion. Date: Wednesday, April 8 Time: 7:00–8:00 PM (Eastern Time) How to Register: Click the registration link below: https://events.teams.microsoft.com/event/24bb6ffd-b82d-42cc-b970-b1b57c59a880@55a89906-c710-436b-bc44-4c590cb67c4a/registration After registering, you will receive an email with instructions on how to join the webinar. If the link does not open, copy and paste the link into your web browser (such as Chrome, Safari, or Edge).

If anyone here needs some financial help in getting to the conference, please let me know. Write to me at Bob@clusterbusters.org Hope to see you there. Bob Wold

Hi Sunil< Yes there are a lot of things you can be doing and it sounds like you will get better info on this board than at the doctor that prescribed 2 sumatriptan tablets. Best of luck. You'll get thru this. Bob

The Eli Lilly clinical study is a phase III study. If you are in the study and have received the injection, you should not try any treatments without consulting with your doctor first. They should have given you instructions on what is allowable and what isn't while you are in the trial. Best of luck, Bob Wold