Elrik138 Posted June 16 Posted June 16 I have had migraines since I was about 8 years old. Sometimes status migrainous and a trip to the ER, or a hospital stay. In my 40s I developed cluster headaches. The first four years I had them I did not go anywhere, because much like my migraines, I can not wear anything including jewelry because everything feels like it is constricting o2 and blood flow. Also I can't stand light or motion. I had written about it in a journal where I simply referred to the headache as brain pain. A week long event. The first time I went to the hospital for the headaches they mistook it for Ocipital Neuralgia. I was admitted to the hospital and seen by many specialists. The Neurologist was able to diagnose it as Cluster Headaches. Since then I was on things like o2, Emgality, Injectable Sumatriptan, ketorolac, etc... Anyway my Dr at a pain clinic sent me to a headache specialist, pain doctor. That doctor gave me (probably misspelled) Sphenopalatine Gnangalion Blocks. A catheter injection thru the nostrils. He also gave me over time more than a few ketamin infusions. My headaches are in remission right now. I am truly blessed and thankful. I am not so disolusioned to believe that my headaches are gone. But it's been 5, 6, years without migraines or clusters. (Though this year I have had 3 migraines, not as bad as it could be. Here is to hoping that I get another year off, from clusters and status migrainous 1 Quote
Craigo Posted June 30 Posted June 30 Thanks for joining and sharing your experience and journey. Long may your extended period of remission remain and best wishes to you. Quote
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