Intro

[longfatyoung]

My Story..  Hello, Im a 47yo male who was a Chronic sufferer since being in elementary school! My attacks were daily in same classes where the teachers put me in a dark corner and let me rock and shake my legs!!!! At the time no one diagnosed me with CH...It was everything Sinuses, Allergies, Even been Put In a straight jacket and thrown in the ultra bright rubber room, during one attack at age 11(A Torture I will never FORGET!!).I Suffered Daily for years, The days without a attack were All HOLIDAYS ROLLED INTO one! Not Counting the mental toll that it takes on your life...a Headache...JOBS, FAMILY, FRIENDS, COACHES...ETC! The Worst part THE HEADACHE seemed to talk to me!!! Telling me the craziest Ideas to to stop the pain! Or how I burdened my family and friends cause i could not make it for a road trip!!  Or the Girlfriends who quipped "YOU ALWAYS SEEM TO GET ONE WHEN I WANT TO DO SOMETHING!!". So THE BEAST told me many times how i could end it and how to do it! I remember one time I was in college & at a 9 attack on the scale, went to EMERGENCY ROOM, Only to be denied treatment and accused of being a DRUG SEEKER & Removed from the ER By security! As I sat in my car rocking back and forth with THE BEAST telling me to do it between the tears, the pain, & a cold 9mm beretta rubbing against my temple ..It vanished !!!! I Think I slept there for a hour i was exhausted from the fight! Well needless to say around the age of 27 I started having Dizzy spells along with the CH Attacks and I also produced breast milk! Turns out I had a Pituitary tumor that required Surgery & when describing the headaches The Doctor put a name to my PAIN for the first TIME...CLUSTER HEADACHES!!! He was a URGENT CARE DOCTOR!! I was so happy i cried I was not crazy..didn't even care about the tumor they found with the emergency MRI had to wait a few days to hear it wasn't CANCER! So after having my pituitary partially removed I was headache free for 2 yrs! They came back with a vengeance Lost my Job was sent to a "HEADACHE SPECIALIST" I started working out HARD every morning for hour and a half..Took c4 Pre workout NO HEADACHES for 6yrs! My Finances have recently took a dive in the toilet, couldn't pay gym membership or buy pre workout for about a month still did what i could in the garage at home but kids would interrupt!  THE BEAST IS BACK With 4 to 6 attacks a day! The night ones are the worst cause they wake you up on full blast! Had o2 tanks, But now getting o2 is a pain! Going to the DR is hard Im struggling to keep what I have Im in Survivor mode. I cant afford a $40 a month gym membership, You really think i got $$ for co pays and 02, Future looks bleak at 47. Now have Anxiety attacks along with the CH , Im in a walking nightmare! To go from that torture everyday 20plus years then to be free for 6yrs..then thrown back into the fire!!! Im really staring into the abyss! Thanks to you all for allowing me to vent & your  understanding. I would not wish this on Anyone, hope for relief to all that suffer at the hands of this Disease!

[CHfather]

That's beautifully written and of course very tough to read.  I'm sure everyone here can relate.  You're not asking, but if I had to give you advice for what to do on a very limited budget I would suggest starting the vitamin D3 regimen right away.  I suppose the initial cost might not be low, and the monthly cost might be close to that gym membership, but I'd expect you to get pretty good results from it, as most people with CH have (including people with chronic CH).  I'll list the ingredients at the end.  You can read more about it here: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708

I'd also suggest considering busting with rivea corymbosa (RC) seeds. You can buy the supply you need for under $20.  Read about busting in the numbered files in the ClusterBuster Files section.  RC seeds are covered in the file on LSA.

Supplements in the D3 regimen:

> Vitamin D3 (Cholecalciferol) 10,000 IU/day (Adjust as needed to keep serum 25(OH)D near 80 ng/mL)

> Omega 3 Fish Oil 1000 to 2400 mg/day (Minimum of EPA 360 mg/day, DHA 240 mg/day)

> Calcium * 220 to 500 mg/day

> Magnesium  400 - 800 mg/day (magnesium chloride, glycinate or oxide)

> Vitamin K2 (MK-4 & MK-7) MK-4 1000 mcg/day, MK-7 200 mcg/day (MK-7 preferred due to half-life)

> Vitamin A (Retinol) * 900 mcg (3,000 IU) for men, 700 mcg (2,333 IU) for women (Maximum Dose)

> Vitamin B 50 ** 3 month course, after that, the 7 B vitamins in the Mature Multi will be sufficient

> Zinc * 10 mg/day

> Boron * 1 mg/day minimum, 3 mg/day optimum

* Included in the Kirkland brand Mature Multi in sufficient quantity

** Vitamin B 50 is a single pill formulated with the seven B vitamins plus 400 mcg of folic acid.  Dr. Stasha Gominak, MD, a neurologist at ETMC, Tyler, TX, suggests a 3-month course of vitamin B 50 to address any deficiencies among the seven B vitamins.  The anti-inflammatory regimen can be used by itself or as an adjuvant therapy along with the Standards of Care recommended treatments for CH 

[longfatyoung]

Thanks for the Info I started the D3 today !!!  Im getting 4 a night NO SLEEP..2 In the day time! Its hard when you have children and have to juggle money! Any advise to help is greatly appreciated!! 

[CHfather]

Have you tried drinking ice water through a straw so it hits the roof of your mouth, with the goal of causing "brain freeze"?  Some people hold juice concentrate against the roof of the mouth with the tongue with the same goal.  Do energy shots, such as 5-Hour Energy, driunk down quickly at the first sign of an attack, help you?  Have you tried standing in a bathtub with very hot water (and then maybe walking into a colder room)?  These are all things that work for some people.

[longfatyoung]

Well the shower trick.. i stand in cold and alternate between the two, hot & cold.Been doing that for sometime it's successful some times! The ice water with the straw Ill have to try!!!