ClusterHeadSurvivor Posted September 4, 2018 Share Posted September 4, 2018 How many of you had DBS? Please answer only if you had....thank you Quote Link to comment Share on other sites More sharing options...
Daveengland Posted September 5, 2018 Share Posted September 5, 2018 Haven’t been here for a long time. But yeah,DBS initially in 2012. was removed and replaced feb 2018. and I had ONS July 2018. medicinally intractable now. but i’m Still standing!!!! Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted September 6, 2018 Author Share Posted September 6, 2018 fascinating ! I had ONS first and then DBS. Its off though. Psilo saved me. Any PTSD/TBI/Side effects? New headaches of sort? I am asking because there is a 4th headpain no one knows why or what. I ahve a mild TBI and PTSD. Amongst other weird bizzare unwelcomed things happen to me. How have you coped? Managed? and deal with it? I have more problems and pain from DBS then clusters. Im curious if you have trouble too. Quote Link to comment Share on other sites More sharing options...
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