devonrex Posted March 15, 2019 Share Posted March 15, 2019 I had joined here, 3 years ago give or take, totally forgotten anything related to that account, but have been what I call low grade chronic for 20 years or so (Low grad in 1-2 a day, at most daily but usually 1 every couple days.) Bad enough of course, as they rarely tended to be anything below a 6. So after the headache clinic I first went to accused me of drug seeking, I stuck with my family doctor, I ended up on topiramate, long story short, kidney stone later after positive reduction in headaches I was taken off topiramate in the worry it would cause more stones, within a couple weeks my ch morphed into a hydra, 4-6 a day, they had always been in and around 2.5 hours long but the gap between would generally run 1.5 hours. For the first year of this I would get a skip day, usually every 5 days, this window slowly closed so last three years, daily attacks from 4-6 a day. Laundry list of meds later, dhe infusion therapy was the only thing that actually did -something- it changed up regular schedules, duration, time between, in essence seemed to stick them in a bag, shake them up and dump them out randomly. I was lucky enough to find a better set of neurologist in the same headache clinic I had left and not come back to, the drug accusing dr having left by then. My lead neurologist now specializes in headache disorders. So, at this point, the ch attacks have somewhat lost their clock like regularity, while nice at first, I now miss being able to try and plan around known factors. Sumitriptan was working at a 1:1 ratio. Lately the efficiency has been dropping off, could be scar tissue from dhe injections 3 a day for a couple months, or just the nature of the beast. So, as of this moment I am refractory chronic ch, 5-7 a day, break between having shrunk the last few days to an hour and under. I also did the vit d regimen with no luck. O2 will not abort but will round off the sharp corners, combined with opiods and monster it will take a 9 to an 8, that to most not familiar with the beast may seem very little but one step is a huge leap. Since it is 9 am, I have not slept since yesterday at 9pm, I apologize for any rambling as my beast is sitting on my shoulder pulling on my eye with a gaff hook as I write. He is being gentle this time. Only a 7. Quote Link to comment Share on other sites More sharing options...
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