News & Updates

We rebuilt our website so the next person searching for answers finds us faster! We have always understood the urgency needed when people need help. Here is what changed, and what didn’t.

Event Date: October 8-11, 2026 • Cost: $150.00 We are very excited to celebrate our 21st U.S. Conference with you. Join us for this long weekend of support, education, and community in Rosemont, IL, near Chicago O’Hare Airport. Check out the event page for information about scholarships, tickets, programming, and […]

Hosted by The Headache Alliance in partnership with Clusterbusters and Chronic Migraine Awareness, the walk united patients, care partners, advocates, clinicians, and supporters to raise awareness of migraine and headache disorders. https://vimeo.com/1224062559

The 10th Annual #CureforCluster VIRTUAL 5k Run/Walk for Cluster Headache Research by Clusterbusters is officially a VIRTUAL 5K! Cluster headaches are a debilitating neurological condition that affect a smaller population than Migraine and other common headache disorders. This virtual event allows clusterheads from around the globe to participate and raise […]

While each organization remains independent, with its own mission and programs, we share a common goal: improving the lives of people affected by cluster headaches through support, education, advocacy, and community connection. ClusterBuds is a global community that brings together people living with cluster headaches, care partners, and members of […]

Cluster Headache is a misunderstood and under-recognized primary headache disorder. On March 21st, we celebrate Cluster Headache Awareness Day to share the realities of this neurological condition nicknamed “Suicide Headaches.” This day for awareness started in the United Kingdom in 2018 by OUCH – Organisation for the Understanding of Cluster […]

Hear the latest headache medical updates in our ononce-a-month HeadWise Medical News Update Episode (episode #149) with headache specialist Tim Smith, MD. Watch the video on YouTube

Cluster headache epidemiology including pediatric onset, sex, and ICHD criteria: Results from the International Cluster Headache Questionnaire Abstract Objective To validate the diagnoses and to investigate epidemiological data from an international, non-clinic-based, and large (n = 1604) survey of participants with cluster headache. Background There are several limitations in current epidemiological data […]

My 13-month-old daughter is “arfing” at the barking cat toy her aunt Alyssa gave her. She just learned how to say “meow,” and now her favorite toy is defying the laws of nature, which may scar her for life. It’s my first major parental challenge.

After two decades of advocacy to get the Centers for Medicare and Medicaid Services (CMS) to provide home oxygen coverage for cluster headaches, Clusterbusters is ecstatic to share they will soon cover this first-line treatment. We’re thrilled to celebrate this huge win for the cluster headache community, but it’s not […]

In the first two decades that Bob Wold had cluster headaches, he tried more than 70 prescription medications in an effort to find relief from recurring bouts of excruciating pain. “It feels,” he said, “like a hot poker being stuck into your temple and putting pressure behind your eye.” Read […]

The particular characteristics of cluster headache (CH) impart a marked burden on its patients. CH is the most common trigeminal autonomic cephalalgia, characterized by recurrent disabling attacks of unilateral retroorbital pain accompanied by ipsilateral autonomic symptoms such as lacrimation, ptosis, nasal congestion and/ or facial sweating. Headache attacks recur over […]

A small, portable device that can zap away cluster headaches is being made available to patients on the NHS. One to two in every 1,000 people have cluster headaches, sometimes known as “suicide headaches” because 64% of sufferers say they think about taking their own life. They involve excruciating pain […]

Last year, the FDA approved the first drug ever developed specifically for the treatment of cluster headache. Since then, the quality of life, amount of disability and the decrease in frequency has been life-changing for many people living with cluster headache, including Leslie Kingston.

Clusterbusters is always interested in sharing information about current treatments with our community. Last week I was introduced to Mark Mitchell, who has been living with cluster headache since 1996. He generously shared his journey with me and what treatments are working to improve his life.  The Long Road to […]

Clusterbusters, Inc. has purchased the rights to distribute an article that serves as a "how-to" guide to help providers successfully prescribe oxygen for cluster headaches. It's a well-known fact that patients with episodic and chronic cluster headaches have a tremendously difficult time getting a prescription for high-flow oxygen therapy to treat […]

As many of you may have heard, last Thursday, June 6, 2019, was an historical day for our community. Emgality became the first ever FDA approved drug developed to prevent cluster headache.

As part of our ongoing commitment to providing meaningful information, resources and support for those living with cluster headache, we wanted to share some information about an FDA-cleared, non-invasive, hand-held therapy called gammaCore™ (non-invasive vagus nerve stimulator), which has been shown in two clinical trials to treat pain associated with […]

Have you registered on the Clusterbusters “Patient Registry” yet? Over the years, Clusterbusters has built the largest worldwide patient database in the world. Become a member of the database and possibly a participant in a research project that will lead to better treatments and eventually a part of the cure. […]

I’m happy to present the following guest blog contribution. It’s on a very important topic to many people suffering from cluster headaches. Any time we have the opportunity to present expert opinions on important topics, we strive to bring it to our members and the general public. Deanna Power is […]