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Showing content with the highest reputation on 03/14/2016 in Posts

  1. It would be so nice if the D3 had this quick of an effect, but my guess is the prednisone taper is more likely what gave him the night off (or at least is a significant contributor), so you'll want to be on guard and brace yourselves in case the CH reasserts upon taper down. And slack, dg? NO, you are a hero in my book.
    2 points
  2. Jeebs is a very wise and observant guy -- though I'm sorry he seems to have been right about this. I'd suggest calling your O2 supplier to review what the new prescription means -- including at least one M tank that they will have to replace (they're heavy). They should give you two Ms and at least one E, plus a cart/stand. At higher flows, your hubby is obviously going to be going through O2 more quickly. I would recommend ordering that Harbor Freight regulator (or going to get one, if there's a store near you), if your supplier will only provide a 15 lpm regulator (or if you have to keep paying that exorbitant monthly amount for a regulator). I think you're wise not to up the lithium, even though the current dosage is kind of low for CH treatment. At least let's see what the D3 does, and how manageable it becomes with the O2, energy shots, and other non-pharma strategies, such as melatonin. The typical medical recommendation for CH is that lithium should only be prescribed for chronic CH, because of its side effects and because severe rebound headaches are common when lithium is withdrawn. Has he ever taken verapamil or another blood pressure med as a preventive? It would be surprising to go with lithium without first having tried verap. There are risks associated with the D3 regimen, if it is overdone (way overdone). The guy who developed it, whose screen name is Batch, has examined its ins and outs for several years, with lots of data from actual users. Batch is just about the nicest and most generous person you could deal with. I'm going to send you his email address in a PM, and you should really feel free to contact him with any questions (like, why the magnesium, or what's the risk of kidney stones). He will write back to you promptly, I'm sure. I'm pinning some big hopes on the O2. It can take awhile for people to really figure out how it will work best for them. I think you said you ordered the ClusterO2 Kit, which was formerly called the O2ptimask. Here's a video about how to assemble it and how to use it.
    1 point
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