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Showing content with the highest reputation on 04/03/2020 in Posts

  1. Links, yes, very sorry. This is the link to the prescribing document. https://drive.google.com/file/d/1Z6tUblQVzzQPPYCOXu_Abn2UqoMZ-rFO/view This is the link to our page with a lot of additional oxygen informetion that can help doctors and insurance companies. https://clusterbusters.org/resource/helpful-documents-for-printing/ Bob
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  2. I agree that it's hard to tell right now whether you have CH. But the anesthetic that is most typically used for dental work does set off severe CH attacks in many people who do have CH. Georgetown's Headache Center is supposed to be good -- but I suspect there's a long wait (if people are even seeing patients now). U of MD has something, too: https://www.umms.org/ummc/health-services/neurology/services/headache-migraine
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  3. Hello Clusterbusters has started a new survey for people that have been diagnosed with either SUNCT or SUNA These TAC's are very similar to clusters but are very short in duration, such as seconds or a couple minutes long, and having many attacks per day. The number of attacks can go up to having more than 100 attacks. If you have been diagnosed with either SUNCT or SUNA please complete our new survey. We will be using the data we collect in this survey for new research projects. This will likely be the largest collection of data for these conditions and will be very valuable in future research projects. The survey can be found here: http://survey.constantcontact.com/survey/a07egywvpzdk7qkcw90/start Thank you all, Bob Wold
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  4. Thank you all so much - I am actually FIVE days cluster free!!!!! After having these for so long, I know to be cautiously optimistic but I am celebrating for now... Thank you again for all of the help and guidance and I am so glad to have connected with this group to know how to better fight this battle. Just so grateful!
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