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Last autumn/winter we ran a survey to gather data on human suffering from a range of conditions and experiences, and you were kind enough to participate by reflecting on your own suffering and providing responses, for which we are grateful. Some of you gave detailed descriptions, all of which were read. We have now finished analysing the data and have written it up in a new post on the Effective Altruism Forum, which you can find here: https://forum.effectivealtruism.org/posts/hTGScBoBDKwmAcGP6/how-to-quantify-global-human-suffering-results-from-opis-s We included some of the text descriptions, which convey a sense of what some of the suffering is like, beyond the numbers. Of course there was no identifying information disclosed. We plan to submit a reworked version to an academic journal, making the case for suffering metrics and for a larger survey that builds on what we learned from this first one. Our goal is for the prevention and alleviation of suffering, and especially severe and extreme suffering, to become a top priority of our governments at all levels. If you’re interested, you can also have a look at our recently published Compassionate Governance: A Strategic Guide to Preventing and Alleviating Global Suffering. Many thanks again, and wishing you to be free of suffering, Jonathan

I have looked into that condition MG a little, even before coming here. I show less signs of that being the case, my skin isn't extremely sensitive in that area like it is for those sufferers. My jaw aches but that is more like a warning sign something is about to happen in my entire left-head. The actual pain I feel is hard to place because it is so, just, ridiculous. Tonight was worse. I got to work at 7pm and I was having full blown attacks from then until about 1130pm. There were times I was sobbing. I mean... I'm a guy, and not just any guy, I'm like 6'3" and built like a football player, I'm a big dude. I also kind of have a stern demeanor, and, it's just weird. My co-workers are being nice to me at least, I've had a kind of rough year this 2015. And again, during the pain tonight, I was just almost twitchy antsy, moving my chair around, rocking my body, rubbing my head against my arm and in the nook of my arm and clenching my fist. Pacing around semi helped. I am planning on seeing a doc soon MG. I'm getting through tonight at work. Tomorrow is Sunday so a doctor might be hard to find. I'm worried about the drugs they will want to give me though. I've read bad stuff about some of the shots and what it does to your heart. Besides, I may or may not have, uh, known about psilocybin for years now. If that's the cure then that's really no problem. It's 3:45am where I'm at, and my jaw got kinda achy around 1:15 but nothing happened. It's weird, these waves of headaches seem to be on a very tight 22hr cycle at the moment. Maybe not. Sorry for all the walls of text. I'm honestly kind of scared right now. 5 days ago I didn't show a bunch of symptoms for something nicknamed "suicide headache" and now, out of freaking nowhere, I do. At least they are just symptoms for now.

Amphs, I can't say for sure that you have CH (it doesn't really sound like it to me, but I'm not a doctor). Moxie has given you a lot of great information. Time for you to get to a headache center (regular doctors are almost certain to be useless, and even neurologists are generally not very good at unusual head pain -- but since headache centers usually have long wait times, start where you can). As Moxie said, you might try drinking down an energy shot (5 Hour Energy, etc.) or energy drink (RedBull, Monster, etc.) at the first sign that the pain is coming on. This does help a lot of people with CH, and I'm just figuring that it won't do you any harm to try. Hard to know what else to suggest. As Moxie also says, an indomethacin prescription can pretty quickly rule in some things and rule out others. I hope others will have something more useful for you. Very, very sorry for the way you're suffering right now.

I got the stronge sense of morphed cluster headaches when I read Echo's post for the first time, been through that myself. I was medicated for roughly 20 years each year medications either raised or added. First years: Episodic, around 50 hits annually. Able to function at least some level during attacks, except the most severe ones, overal attack duration from 30mins to 1 hours, 1½ hours max. Cycles lasted for weeks, most attacks during sleep. 10 years later: Episodic, around 300-500 hits annually. Unable to function at any level during attacks, the pain volume much greater, duration from 1 hour to 3 hours (max). Cycles lasted for months, daily and nighttime hits equally. 20 years later: Chronic , around 1500 hits annually. Attack severity reached maximum that I have ever experienced, during hits unable to even move my limbs, lying on the floor until losing consciousness. Overall attack duration 2-4 hours, 5 hours maximum. Hits had lost all the regular schedule they had when CH began, I could be hit anytime, anyhow. My morphed CH could not have been possible without ridicilously dangerous continuous prescription medication. Ever since got rid off them, first experienced the longest pain free stretch I have ever had (with busting) and now CH is very, very slowly, day by day, going back to it's "original form". I'm thinking it could be something else but could very well be just medication morphed clusters.