Hi all, once I understand all the abbreviations i may make some progress, had CH's for several years now, in a cycle right now, hopefully its at its peak because they really are running me down, most people i know have no idea what they are like, only those that have seen me at my worst understand. I've been referred to the neuro hospital in london, having an MRI in the next few weeks, been on steroids (had 2 weeks PF) then as the dose went down...Bang back with avengence, also on Verapamil 120mg 3 times a day increasing every 2 weeks, also Sumaptriptan which do work if i take soon enough, if not equals agony...also have adcal d3 which don't seem to help but were prescribed with the steroids. this cycle has been going on for over 3 months now affecting my work as i have lost a lot of time off work. I just wish they would go away!
But I'm learning more and more thanks to this site