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Everything posted by christina

  1. Thank you for the website, that was a big help! I had been searching for welding supply company's, and not having much luck. I found a 20 cubic ft tank and the regulator at my local store, about $120 all together. The tank is the same one they have listed at their online store. Before I head off to buy it, would the tank work for an attack? Thanks to the vitamins j am down to three attacks per day! A big relief from where I was when I found all of you.
  2. Thank you all, I know I'm grasping at straws here. My problem is this... I am a single mom, I make too much money to get assistance from the government, but not enough to have insurance or savings. I was not prepared for this ch attack, when it hit I went to my gp, paid cash, requested oxygen and was told he can't do that. He gave me the rx for imitrex. I have been using the tip from the other board so I get six shots from each box, sometimes I try to stretch it to eight. I get between four and seven severe clusters in 24 hours so it doesn't last long, about two days when I stretch it. If I do
  3. I didn't have luck finding an affordable solution to getting oxygen prescribed, so I am trying to find the best way to use the welding tank. I found a few used tanks on Craigslist and a place that fills them for $15. I just need to know what to look for. I have my mask, so ill just need a regulator? And the tank of course. Any tips/ advice?
  4. Sorry about the repost, I don't know what went wrong. Thanks again, it should be easier with a starting point of doctors who know what they're doing. I feel very misunderstood by most of them. I may have to wait another week to see the Dr, I started taking the d3 and fish oil yesterday and added the calcium today. So far I am seeing a difference, I have only had the shadow today and it seems to be fading out now. My attacks have always been sporadic, I have read that many people get theirs at certain times, I have good days and bad, so I'm not sure if today is just one of my lucky days or if t
  5. I will continue my hunt for the welders oxygen, I called a few places that didn't carry it, and by the time I found one that did they gave me their outrageous pricing. I've requested the rx from two doctors and the er with no luck and paid out of pocket for the office visits, its frustrating. The imitrex I get is the generic, and yes its the injections. I'm disappointed to hear it interferes with the seeds. But its very expensive anyway so I need a better solution. The vitamins I got are fish oil with omega 3, 1200 mg/ 360 mg, I take 3 pills, vitamin d3, 5000 UI, I take two, and calcium magnes
  6. I think it is so sad and ridiculous that there are so few doctors and ers that understand. The pain of a bad ch is far worse than giving birth (3 kids, all natural, and I didn't even flinch at the pain because it was far less than a ch). There have been a few ch attacks were I searched the house for a way to end it. I've taken my last breath a couple times and downed so many pills idk how I survived. These attacks need to be treated in ers for the people who can't afford a doctor, and the sufferers should not be sent home with an rx for a migraine pill. I saw the Dr oz episode about clusters a
  7. Thank you all for the wonderful information. I started the vitamins today, I also ordered the rc seeds. I picked up a box of sumitriptan as well. I had been out since Thursday and had to wait for my unemployment to come. I was hit hard last night, but knowing there is light and that I will not suffer too much longer got me through it. Most doctors and ers have no idea what we go through or how to help us. I think they were trying to treat me for a migraine. I didn't take the rx for zomig, I knew it would be a waste of money. Will the sumitriptan interfere with the rc seeds? And thank you again
  8. Thank you all so much, I just came back from the er, I don't know why but this episode is kicking my ass more than usual. I havent slept since Wednesday. I begged for an rx of o2, no luck, they wanted to give me zimig??? The red bull and monster solution doesn't work for me. Once I get the strength up I will get the vitamins listed. I called about welders o2 and they said $70 a day to rent the tank. I just moved to a new state a few days ago so I doubt ill have any luck with the mushrooms. Anyone know a place for affordable welders o2 in the phoenix area? I will also order the seeds. Anyone k
  9. Hi, I'm new to the bored but far from new to the pain... I have been suffering periodically since I was 14, usually I get hit every six months, for whatever reason I was given a two year break this time. You all know that doesn't matter because once it hits its horrible. I was laid off just before the attacks started so I have very little money and no insurance. I am looking my mind and am becoming extremely depressed. Is there a fast and inexpensive solution or any recommendations? Please help quickly, I'm almost always in pain from a shadow and my body is bruised from the attacks, I don't kn
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