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Everything posted by eileenbunny

  1. Applications for Headache on the Hill are open. If you haven't done this event before, it is empowering to share your story and your needs with your elected representatives. This event is for U.S. residents. Apply today: https://secure.everyaction.com/RW0G0XpWxkyku204SvBfyQ2 Registration for our 1st Annual U.K./E.U. Patient Conference is open. We will be meeting in Glasgow U.K. for education, support, and fun. We hope you will join us. https://cbglasgow2023.planningpod.com/ For more details, check out the sub-forum on events and advocacy, or just click on the links.
  2. Your voice matters. Our elected representatives in Washington DC need to hear from you. Apply to join the 2023 cohort of Headache on the Hill advocates to make your voice heard in support of equitable policies for those impacted by headache diseases. Apply by November 30th at https://secure.everyaction.com/RW0G0XpWxkyku204SvBfyQ2
  3. Registration for the first annual Clusterbusters U.K./European Patient Conference is open! Join us in Glasgow for what promises to be a memorable inaugural event. Register today. https://cbglasgow2023.planningpod.com/
  4. 2022 was an amazing year of growth, and we are grateful for your support! Clusterbusters continues to advance research on cluster headache. We're expanding our advocacy to be more effective in supporting those with CH. We're planning 2023 in-person conferences in both the UK & US, as well as continuing with other smaller events such as camping, the virtual 5K, and our online support groups. Please consider Clusterbusters on #Giving Tuesday, November 29th.
  5. First, to answer Angelbrz, this conference is in-person only. We may record some sessions and put them on YouTube for viewing later, but for now, it's just in-person. As for hotel rooms, the group rate applies if you stay all or part of the conference time. It also applies to the three days pre and post event in case you want to stay additional time. So feel free to book for as little or as many nights as you want, just do so in the next two days as the 24th is the last day to access the group rate.
  6. This is the last week to book your hotel room at the group rate ($139-king, $159-2 queen). After August 24 you will not be able to take advantage of this great deal. You can find the link to obtain this rate on our conference webpage: https://17thclusterbustersconf.planningpod.com/
  7. As you likely know, registration is open for our 17th Annual Patient Conference, which will be in person in Rosemont, IL. The agenda has been posted. This agenda is subject to change, but I thought you all might want to see what we have in store for you. Hope to see you there!
  8. We are so excited to return to an in-person event this year. Please join us September 15-18, 2022 in Rosemont, IL for a great conference. See our event site for details! https://17thclusterbustersconf.planningpod.com/
  9. Angela Stanton is neither a medical doctor nor offers safe medical advice. We do not recommend you follow her protocol or join her cult.
  10. Really looking forward to seeing everyone this weekend!
  11. This event is definitely still planned. However, if things go sideways and events have to be cancelled again, I'm guessing that airlines will change their policies like they did last year.
  12. Hi everyone, https://cbconference2021.planningpod.com/ This is the site and registration for our 2021 conference in Chicago/Rosemont, IL, Sept. 23-26, 2021. I know several people have asked about a virtual option and I'm going to say I will try to do this. It's a heavy lift with an in-person event at the same time, and I don't currently have the manpower. If you would like to volunteer to help with technology (REALLY need people who are tech literate here) it will help to make this happen. As we are in close contact during our conference, the in-person conference is intended for those who have been vaccinated for Covid-19. We are looking forward to seeing real, live human beings again and hugging you all in September. -Eileen
  13. I am soooo excited to announce that Clusterbusters is going camping July 23-25, 2021 in the Shenandoah Valley! We hope that you will join us. More information and registration can be found here: https://cureforclustercamping2021.planningpod.com Please don't hesitate to reach out if you have any questions. I'll try to check in here, but also feel free to email me at eileen@clusterbusters.org.
  14. Hi Chris, I have added you to my list of people to reach out to when we start to try to plan that again. Thanks, Eileen
  15. Hi all, Due to the pandemic, we have once again needed to postpone our Cure for Cluster Cocktail party in NYC. We'll be sharing more info about the new date soon. Also, we are having some challenges with arranging our camping trip due to the pandemic, so for now that is on hold. We hope to pick up the planning for that soon and it is still a goal for 2021. Our conference is still planned for September and as soon as we have details ready, we'll open registration for that. It's been a difficult time with event planning, but we look forward to getting together soon. We miss you all.
  16. Hi, Many of the sessions will be on our YouTube page, but not immediately. We are working to ensure the videos are packaged appropriately.
  17. The Clusterbusters team has made the difficult and heartbreaking decision to cancel our in-person conference planned for this September in Chicago, Illinois. Due to risks of Covid-19 and restrictions in place in Illinois, we believe this is the only prudent course of action. We will be hosting a virtual conference in September instead. More details regarding this event will be available as soon as possible. If you have already registered for the in-person conference, details about your registration can be found here: http://events.constantcontact.com/register/event?llr=asfwt7iab&oeidk=a07egkpa2ek0382d233 If you have any questions, please feel free to reach out by emailing me at conference@clusterbusters.org. We miss you all and cannot wait for this pandemic to pass so that we can see you all in person, but for now, we will see you online. Please keep an eye out for new event announcements and ways to say connected.
  18. Hi all. At this time we are still planning to host our conference in person. The health and safety of our attendees is of utmost importance to us. If we determine that it is not wise to host an in person conference in September we will host a virtual event for those dates and consider rescheduling or cancelling. As we learn more about Covid-19, we will keep you updated. As you know this is a rapidly developing and changing situation. Thank you for your patience. In light of this, we have decided to take registrations without payment moving forward. If we have an in person conference, the price will be $150 and payment will be taken at the door. If we have a virtual conference the price will be $40. For those that have already paid, refunds for part or all of your conference registration fee will be available to you in the event we cancel or you decide not to attend. Please register if you believe you will attend one or the other. We will still need a head count. For more information, head here: https://776176229.planningpod.com
  19. These are all full, but we will be adding more due to demand. We'll let you know.
  20. Hi Rox, we do offer travel scholarships every year to help those who find it financially straining to attend. They aren't always full scholarships, but they can help offset travel/registration costs.
  21. As we announced at the conference this week, next year we will be back in the Chicago area. If you register before September 28, you can receive the 2019 prices. Register here http://events.constantcontact.com/register/event?llr=asfwt7iab&oeidk=a07egkpa2ek0382d233. We can't wait to see you next year!
  22. We will most likely be heading to the east coast sometime in the next three years. It will probably not be Atlanta though.
  23. Hi all, Here's an updated list of speakers. More to come. Dr. Brian McGeeney Dr. Elizabeth Loder Ms. Christina Treppendahl Ms. Nicole Hemmenway Dr. Emmanuelle Schindler Mr. Kevin Lenaburg Dr. Nate Bennett Dr. Mark Burish Dr. Shivang Joshi Mr. Dennis Pohlenz Mr. William Mingus Mr. Bob Wold Mrs. Eileen Brewer
  24. 14th Annual Cluster Headache Patient Conference Talent Show September 19, 2019 We are excited to showcase some of the most talented Clusterheads at this year’s conference. If you sing, dance, play an instrument, or do anything else exciting (and suitable for an audience), we want you to audition! Please send your video to Timf1913@aol.com by July 15th, 2019. The top 10 will perform on Saturday, September 21, 2019 during the Clusterbusters Farewell Dinner. You must be available and plan to attend the conference in order to apply. We may be limited in the A/V equipment we can supply so please plan accordingly. We will post results of the auditions on Facebook and our website event page on July 30, 2019. We will also be providing a display area for anyone that wants to display their talents. Let Tim know at the above email address if you’d like to display your visual art. Space may be limited. We’ve witnessed a lot of great talent over the years and we’d love to have you share it with the rest of the community. Let’s show The Beast what we can do!
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