eileenbunny

We will not be streaming any content, but we will be recording some of the content and posting it on our YouTube.

We will kick off on Thursday evening with a cocktail reception and registration. Following will be two full days of presentations, workshops, and sessions, (Friday and Saturday), and there will be a half day of presentations and discussion on Sunday. We will finish at around noon on Sunday.

We are excited to open registration for the Clusterbusters 18th Annual U.S. Patient Conference in Disney Springs, FL. Join us for a long weekend of support, education, and family from Sept 7-10, 2023. Register today! https://386964908.planningpod.com/

Stopping by to acknowledge all of those who suffer with cluster headache. Your bravery and hope is inspiring to me as Joe and I advocate for better psychedelic legislation in New York. Don't forget to spread awareness about cluster headache today and every day.

Clusterbusters is excited to announce our 8th Annual #CureforCluster VIRTUAL 5K Run/Walk for Cluster Headache research and awareness. The event will be Saturday, June 24, 2023! Register with coupon code SAVE5 by March 21st to save $5. For more info and to sign up visit the race page.

US Conference is indeed in Florida. It's going to be in Disney Springs at the Drury Plaza Hotel Orlando - Disney Springs September 7-10, 2023 and registration is opening very soon. We are just working through a couple last-minute details. When that happens, we'll shoot out an email and put a post up here in a separate thread, but you can look for it in the next few days.

Here's a list of the articles published in the past month, written by us or featuring our work. Clusterbusters in Practical Neurology Clusterbusters in TrialSite News Clusterbusters in Times Union Bob Wold on KWGN Colorado Clusterbusters Discussed in Citizen Science Emmanuelle Schindler in Science

For most people, mushrooms are not a cure. They are a treatment. We don't know as much about them for migraine as we do for cluster. There has not been a strain that has been identified to be better than others. Find one where you understand dosing and try following the busting protocol to see if it works. You can always adjust.

The truth is that we do not know what triggers migraine. We have guesses but the research isn't there to back up any of it. If put in an environment where you don't know what the weather is, you don't know what food you are eating, and you don't have any external stimuli, migraine is still unpredictable. Eat healthy, get exercise, stay hydrated. This is the best advice anyone can give someone who is living with migraine.

Applications for Headache on the Hill are open. If you haven't done this event before, it is empowering to share your story and your needs with your elected representatives. This event is for U.S. residents. Apply today: https://secure.everyaction.com/RW0G0XpWxkyku204SvBfyQ2 Registration for our 1st Annual U.K./E.U. Patient Conference is open. We will be meeting in Glasgow U.K. for education, support, and fun. We hope you will join us. https://cbglasgow2023.planningpod.com/ For more details, check out the sub-forum on events and advocacy, or just click on the links.

Your voice matters. Our elected representatives in Washington DC need to hear from you. Apply to join the 2023 cohort of Headache on the Hill advocates to make your voice heard in support of equitable policies for those impacted by headache diseases. Apply by November 30th at https://secure.everyaction.com/RW0G0XpWxkyku204SvBfyQ2

Registration for the first annual Clusterbusters U.K./European Patient Conference is open! Join us in Glasgow for what promises to be a memorable inaugural event. Register today. https://cbglasgow2023.planningpod.com/

2022 was an amazing year of growth, and we are grateful for your support! Clusterbusters continues to advance research on cluster headache. We're expanding our advocacy to be more effective in supporting those with CH. We're planning 2023 in-person conferences in both the UK & US, as well as continuing with other smaller events such as camping, the virtual 5K, and our online support groups. Please consider Clusterbusters on #Giving Tuesday, November 29th.

First, to answer Angelbrz, this conference is in-person only. We may record some sessions and put them on YouTube for viewing later, but for now, it's just in-person. As for hotel rooms, the group rate applies if you stay all or part of the conference time. It also applies to the three days pre and post event in case you want to stay additional time. So feel free to book for as little or as many nights as you want, just do so in the next two days as the 24th is the last day to access the group rate.

This is the last week to book your hotel room at the group rate ($139-king, $159-2 queen). After August 24 you will not be able to take advantage of this great deal. You can find the link to obtain this rate on our conference webpage: https://17thclusterbustersconf.planningpod.com/

As you likely know, registration is open for our 17th Annual Patient Conference, which will be in person in Rosemont, IL. The agenda has been posted. This agenda is subject to change, but I thought you all might want to see what we have in store for you. Hope to see you there!

We are so excited to return to an in-person event this year. Please join us September 15-18, 2022 in Rosemont, IL for a great conference. See our event site for details! https://17thclusterbustersconf.planningpod.com/

Angela Stanton is neither a medical doctor nor offers safe medical advice. We do not recommend you follow her protocol or join her cult.

Really looking forward to seeing everyone this weekend!

This event is definitely still planned. However, if things go sideways and events have to be cancelled again, I'm guessing that airlines will change their policies like they did last year.

Hi everyone, https://cbconference2021.planningpod.com/ This is the site and registration for our 2021 conference in Chicago/Rosemont, IL, Sept. 23-26, 2021. I know several people have asked about a virtual option and I'm going to say I will try to do this. It's a heavy lift with an in-person event at the same time, and I don't currently have the manpower. If you would like to volunteer to help with technology (REALLY need people who are tech literate here) it will help to make this happen. As we are in close contact during our conference, the in-person conference is intended for those who have been vaccinated for Covid-19. We are looking forward to seeing real, live human beings again and hugging you all in September. -Eileen

Yes, Virginia!

I am soooo excited to announce that Clusterbusters is going camping July 23-25, 2021 in the Shenandoah Valley! We hope that you will join us. More information and registration can be found here: https://cureforclustercamping2021.planningpod.com Please don't hesitate to reach out if you have any questions. I'll try to check in here, but also feel free to email me at eileen@clusterbusters.org.

Hi Chris, I have added you to my list of people to reach out to when we start to try to plan that again. Thanks, Eileen

Hi all, Due to the pandemic, we have once again needed to postpone our Cure for Cluster Cocktail party in NYC. We'll be sharing more info about the new date soon. Also, we are having some challenges with arranging our camping trip due to the pandemic, so for now that is on hold. We hope to pick up the planning for that soon and it is still a goal for 2021. Our conference is still planned for September and as soon as we have details ready, we'll open registration for that. It's been a difficult time with event planning, but we look forward to getting together soon. We miss you all.