madmike

Hello, It has been a decade since I have visited y’all. I regret forgetting how support this group had giving me on the past. I’m sorry I have not been there to support others when I was pain free. There is a vitamin D cocktail that helped me very much, could you direct me to it? Recently I have been diagnosed with an autoimmune disease called CIDP and coincidentally or not my headaches have returned after being five years pain free. Up to an imitrex injection nightly for a month and high flow O2 throughout the day. Not going completely away at all. Im am going to hit the forum archives hard. So as you all know I am in panic mode and am reaching out for help and support. Thank you, Mike D

Damn buddy I feel for you I really do. I am going through a tough bout myself right know as well. You really need to find a Doc that know Clusters like the back of their Hand... NOW. And I don't nec. mean a "headaches clinic" I have had some bad experiences with some of these. This site has provided me with excellent advise and support. I cant tell how glad I have found it. But you also need a knowledgeable doctor. Keep going from one to the next until you find "the one" I have yet to try "busting" however I believe I am on that road. I wish you success and relief.

I have increased spinal pressure (psuedo ceribri tumor) which when acting up dramatically increases my headaches, right in the middle of an episode and getting three to four a day. I have had one every night for about the past five years to begin with so this is fun.