met la

oh yeah i forgot i woke up in a horrible moood , yelled at kids , but i think that is from lack of sleep , ever since those ha s have started waking me up in the middle of the night , just wishing that would end . would be a nice start

i decided on some calcium, magnesium, and zinc,with vitamin d3 compound and had a better day today than all week , but it will take a while before i know if it did anything at all , may have just had a good day i remember one or two days when i woke up and had no trace of a headache or cluster , and it was weird , like something wasn t right . i think if this thing ever goes away it will take time to readjust , normal day scared the hell out of me , it was like oh crap something just changed in my brain , did the malfunctioning part just die or did i have a stroke or something in my sleep , or is a super cluster gathering strength ? turned out to be a low cycle with a few whoppers lasted acouple of weeks,but still not a good way to be . just weird going from multiple daily to bam , normal even for a day , after so long feel bad for you episodic guys, on a constant roller coaster

i was just saying the chemical names and stuff on vitamin d are used alot in headache sites that i have visited , so you are definitely on to something and i know that gatorade is a big trigger no no for me anyway and it has phosphorus , magnesium , potassium , which if are in unbalanced proportions are suspect in this tetany stuff so also it says that these d vitamins are similar to steroids , which i read can cure headaches , but are not prescribed because of roid rage but i wonder if it is processed in the liver , how safe it is , and since it is used to get your bones to uptake calcium, perhaps it works similar to those calcium channel blockers ,maybe a combo of vitamins or vitamins and drugs to get rid of calcium in blood( by making bones and body absorb it) could have the same effect , but less stress on liver or at least be worth trying , and sunlight turns dvitamin d and d2 into d3 ( i think), which if you guys are like me , i am starting to think i am part vampire when there is nothing i have to do during the day and try to find out what else this stuff does in high doses in the meantime if it works hey , keep me posted, i am going to start at lower level than you guys for now though , maybe a little boost will make the meds more effective sorry , i have been drinking coffee , not a trigger for me , but helps clear my head sometimes,as you can see it goes in ten thousand directions at once , it s 3 am , can t sleep , woke up yesterday at 130 am with my head about to explode , took a nap earlier and it happened again, just sitting and waiting ,had a few since, but i am heavily medicated now, might try to see about getting some stronger neurontin tablets i am at 1600 mg, and f it some stronger fiorinol too, i am sick of taking pills , maybe the stronger ones will last longer

some facts from wikipedia Light-exposed mushrooms may provide up to 100% of the recommended Daily Value of vitamin D.[4] Vitamin D also modulates neuromuscular function, reduces inflammation, and influences the action of many genes that regulate the proliferation, differentiation and apoptosis of cells Vitamin D is a group of fat-soluble secosteroids, the two major physiologically relevant forms of which are vitamin D2 (ergocalciferol) and vitamin D3 (cholecalciferol). prevention of hypocalcemic tetany while sufficiency prevents rickets in children and osteomalacia in adults The usual cause of tetany is lack of calcium, but excess of phosphate (high phosphate-to-calcium ratio) can also trigger the spasms. Milk-and-alkali tetany is an example of this imbalance. Underfunction of the parathyroid gland can lead to tetany. Low levels of carbon dioxide cause tetany by altering the albumin binding of calcium such that the ionised (physiologically influencing) fraction of calcium is reduced; the most common reason for low carbon dioxide levels is hyperventilation. Low levels of magnesium can also lead to tetany symptoms. Rebirthing-Breathwork, purposeful rapid breathing for one - two hours at a time; first causing hyperventilation, can sometimes lead to tetany. Cow grazing on rapidly grown pasture with tetany of the neck suggesting Grass TetanyAn excess of potassium in grass hay or pasture can trigger winter tetany or grass tetany, respectively, in ruminants. Osteomalacia in children is known as rickets nerve disease The most common cause of the disease is a deficiency in vitamin D, some of this stuff you can find on migraine sites ,or here o2 magnesium rickets is said to be painfull steroids etc ,

ergocalciferol is vitamin d in my chewable vitamins , sound familiar ergot caf ergot ,,, but different compound or chmicals are also classified as vitamin d i think ? ergo ergot calcif calcium erol -----form the latin ???????????

oh yeah sorry about the d3 thing i am going to try to pick some up at the pharmacy , but i don t want to take too much then idiots will say that i caused the headaches with d3 , but i will get the biggest dose they sell 10k mg seems like alot maybe at gnc but i am wondering there are different forms of vitamins ,, what specific form of d 3 are you taking ? i mean the people who it is working for ?

don t know yet if i will be able to get prescription for it , but i will discuss it with my neurologist ,i suppose i could fashion a mask , but i would hate to piss off the doctors with it at this point ,or the mushrooms, plus i am kindof scared i might freak out and rip my own face off or something but it is seeming more and more like this gabapentin is failing ,, seemed to help for a while , guess i should be grateful but i don t think it is working any more , since i went back to work it has gotten very horrible the last few days , just like last summer , been doing lawncare work and i have very light duty in the winter going to ask about verpamil , lithium, etc ,might bring a list with me , originally i had asked about triptans , because with the great doctors we have here , greatest on earth i am told , it seems like the only people who can get their hands on narcotics are the drug users , and since i am not a crackhead ,i had alot of trouble trying to get drugs maybe now that i have been on codeine for ?6months ,i am a crackhead though the fiorinol keeps the attacks off for about 5-6 hours,still not sure if it kills the first one , kept a journal for a while and it was 45 to 180 minutes before attacks ended,after a capsule the gabba seems to lessen the nerve pain around your eye ,which , it may still be doing even though attacks are becoming more severe as it is failing, if i am on enough fiorinol codeine and have taken gabba on time for a few days, i can feel the nerves in my eye and my nostril gets clogged , both eyeballs have veins in them , like i am having attack with 10 % nerve pain and 8% headaches strength , still get other side effects though which i haven t really tried to decipher enough to put into words , but there is something going on in head during attacks? of course you would have to already be on a capsule , too otherwise headache and nerves are very strong and you wait 45-180 min but nerves are less painful 70-80% of full strength most of the time but real headaches near full strength are breaking through medication more often lately,at least 1or two bad ones a day , starting to worry, can see repeat of last year all over , right when i had just started feeling better , but i can t afford to take any more time off of work , already will have to burn the candle at both ends to catch up , make up for last year ,and i am just getting the first side lit i can t beat the devil , or at least it is not going to be easy, used to want to buy a gun for headaches , now i am wondering if i will need one to knock over a pharmacy when my prescriptions run out ,,,life is a M F :-/

thanks everyone for the info , i checked my blood pressure after taking fiorinol capsule and it was 91/78 so i started to thinking after reading another post , but i probably am just going in circles again , wtf is this stuff and why me? but thanks alot , i mean it ,nobody knows , except you guys , take an aspirin , your a wuss , etc etc is all i hear i just don t see how it moves around in your head ? seems like if something is broken , it would be the same thing broken all of the time ,but i have a baby alien in my head sucking the life out of me , twisting and turning hey any of you guys ever see that m t v show the head where he had the alien inside of his head , very funny but i am having a crappy day and i better go before the conversation turns negative thanks again

oh and i get the very long attacks , 45-180 mins each , i know the fiorinal /codeine will stop the second one from coming , but not really sure if it helps the first attack but i get the eye pain throughout the day , and a few bad ones break through mostly at night and early in the morning, not to be negative , but lets just say that i didn t plan on being around much longer a month ago,and i am very tired of taking these pills all of the time, but i just want to be prepared maybe with some oxygen or something if this is just a phase

i mean when i say i can feel my eye that i feel the nerves and the vertical nerve , that i don t even think is actually a nerve , can t find it on any diagram of the face or eye , been on this stuff for over a month and just wodering , is this a fluctuation or is it working?

hi everyone , i am new to this site , and i tried to post on the most recent board , i get these attacks all day long and sometimes in rapid succession ,have for 9 months now , fiorinol/codeine+gabapentin seems to be helping , but i can still feel the nerves in my eye ,just not as intense, was wondering if these chronic clusters can go through a period where they aren t as intense or if the drug is actually working , seems like i had some periods where they were better and worse , but this is considerably better, but i am sure that i am at the mercy of the doctors with this partial solution, at least i can work lately though, 2 big attacks a day average