MoxieGirl

Hi Ron, Thank you for the advice. Yep, D3 is my first stop, and RC seeds. I've experimented a little with D3 already, and have pretty strong hopes for it, but am not going to put all my hopes in one basket. I have also arranged to get some shroom spores. So, planning ahead too. You know, I've never properly tried pure oxygen. Not from a tank and all that. I did get a canister once, and tried that a few times, I just got really light headed and felt sick and dizzy. But, my clusters are a slightly different breed than most. They are at the shorter end of the spectrum, and I wonder how long it takes for O2 to have an effect? Mine typically last 10-15 minutes. Also, I live on my own, and I know doctors are really, really hesitant to give O2 tanks to people unless there is someone else there to turn them off from time to time. So I've not even broached the subject with my doc. I have a very unorthodox abortive I sometimes use, that is usually very, and instantly, effective. Although I haven't tried it for awhile. Probably should get it back out as my clusters are getting worse again. But it is the only thing I've ever found that works for me, and I'm probably one of the few people in the world crazy enough to do this. And it may only work because my clusters are so short. I don't know. Thanks again, Renée

Yes, my long-term goal is to be a novelist. My first novel, which I plan on publishing early next year is called Katera and the Assassin: Katera - some sample chapters can be found here: www.katera-assassin.co.uk I'm going to be ghost writing a friends autobiography soon, if we can ever get our two calendars to mesh. But then I need to start book 2 of the Katera series. I also want to write a book on Pain - severe, invisible, pain. But, I have about 10 or so other books outlined to write as well. Just not the time at the moment. Stupid day job. LOL

Tingeling, I went to, and had a read of your blog. I see you like crossfit. My combination of headaches - daily chronic, migraines, and clusters - pretty much prevent me from any kind of regular exercise. Anytime I get into a routine, I fall back into a period pain. But, I'm hoping busting will bust that cycle, and I can exercise once again. I find I have to keep busy, it helps to keep the demon away. So I make candles, do archery, write books, as well as have my own business and an active social life. If I stop, I hurt.

Thank you Lt and AO. Your words mean a lot to me, and I'm looking forward not only looking back at this post and laughing, but being around long enough to help others. I've known about Clusterbusters for awhile now, but always considered the options here very extreme. But, after the very extreme year I've had, they now seem quite appropriate. Well, life safing actually. Alcohol isn't a trigger for me. In fact, it is a last resort abortive for my migraines when all my triptans fail. But I like the mint tea idea better. Or lemon and lime. Will try both. I won't be off Topirmate for a couple more weeks, then need a few days to detox. But am now really looking forward to giving this a try. Have been reading everything on the site I can find, was up till nearly midnight last night reading all the pages. Hugs Renée

Hey Mystina, and everyone, I'm just about to order some RC seeds. I found a thread up above with a link to a site in the UK. A question or two. It seems, from what I'm picking up, that with the shrooms, it is a couple times a year thing. But how often do you have to do the RC seeds? I imagine it must vary person to person? Also, I see mentioned wine helps with the taste. Does that mean mix the water/seeds directly in with the wine and drink? I'm still reading. Lots to take in. Thanks. Renée

Thanks Mystina, I've read a thread about the RC seeds. And they look promising. I'll google them and see about getting some in the UK. But I might also have a good mushroom source, and not sure if I'm going to have to grow my own initially. Although, for the long-term will want too. A lot of people talk positively about the Vitamin D3 regimen too, but it doesn't work for everyone, about 78% at the moment. Although my initial tests have been positive. I don't want to be popping a handful of pills every day. And in my experience, missing one dose, and the demon returned with a vengence and it took days rebuild things back up. Anyway. Thank you for the hope. Will just have to wait and see. xx Renée

Hi Everyone, I've had clusters for 5 years now (along with daily chronic headaches, which I have about 5 days out of 7). I've also had migraines all my life (run in the family) but they have gotten considerably worse since the clusters started. When my clusters started, they were episodic with a month or two gap, but this year they turned chronic, and I have them on averave every three days, my longest break being about 12 days. I get 1-3 attacks when they hit, sometimes up to 5. The problem with my attacks is that they last, on average, 10-15 minutes, sometimes 30 minutes. So normal aboratives don't have time to work. I've been on Topiramate (Topamax) for over a year now (and yes, I tried everything else before going to T), but will be free of it in a couple of weeks. I tolerated it well, but it would stop working ever few months, and I had to keep increasing the dose. I'm getting ready to try the Vitamin D3 regimen, but that, and the LSD/shrooms mentioned on this site, are my last hope. The cluster I had fifteen minutes ago was the 220th I've had this year. I can't do another year like this one. I'm single, and it is too much on my own. I have to find a solution, or else. I have a friend getting me some mushroom seeds. And I'm beginning my research of this site. I'm sure you've all heard this before. But you are my last hope. Renée