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tingeling

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  1. tingeling

    Once in awhile

    Being in that room, being here and now, acknowledge and acceptance of own feelings around felt physical pain is to me not suffering and does not mean psychological suffering either, it is one of the chocolate pieces in life and it fascinates me how we can move from one room to another like that. It`s beautiful, CH has changed me and makes me want to be a better person Weatherman, that song was beatiful Thank you for sharing both thoughts and song Love and PFW to you all Hug from me Tingeling
  2. tingeling

    Once in awhile

    Hi Once in awhile i think we all get some thoughts and feelings that are hard to describe. Once in awhile i find myself in a place where i get this feeling of something, life maybe, i don`t know. Life and death. Inside in that room i`m not sure how long i`m gonna live. Or more how long my head will last me. It seems to me allot of CH`ers get heart attack. Maybe from the triptans we used, but i`m not sure, i think maybe it`s one of the CH "system failures". When your full of all kinds of symptoms, and most of them are felt in the head i wonder is it a matter of time before the blood vessels are worn out from all the pressure? I ask myself if i will know the difference between a high kip and a stroke. When my head stops to work, when i cannot think or remember or find words or forget what i talk about, i'm thinking this must be close to dementia. My brain feels unhealthy in some way. Then i feel tired, like i`m tired of living, i get the feeling i won`t live to be an old woman. Or will CH go away some day, just vanish? Most likely not. Lying like this, looking at my condition, everything feels so far far away. Can i do it, can life continue year after year like this? Life feels fragile, like it can slip away anytime. And it can, that is a fact. I tell myself that we cannot control these things. One time i read a blog about this little girl, she had epilepsy, a very difficult case, she couldn't go to school, basically she`s so sick she`s in a hospital bed all day long. That`horrible and unfair. My situation is not, actually it is the opposite. Fell asleep, woke up and felt like sharing my feelings with people who understand what a condition might bring on you once in awhile, with the only persons i know that visit the same room from time to time. I get up, make myself ready for a new day and the thoughts and feelings are left in that room, feels far far way. A short visit and we move on, like it didn't happen. Life is a mystery. Forrest Gump said his mother told him that life was like a box of chocolate. Sure is, every bit do not taste the same but their all part of life. I wish you all a wonderful day. How lucky we are I`m grateful for my life and what it brings Allot of love and hugs from me Tingeling
  3. tingeling

    Worth a try

    It is a light you put into your ears, like reg earphone. I use it on a reg basis. Not sure about spectrum and lux, but reg daylight therapi has to be a certain spectrum so i guess this also is a special spectrum of light.
  4. tingeling

    Worth a try

    Lol, in Norway too ;D
  5. tingeling

    Wish me luck folks.....

    Gooooood luck!!
  6. tingeling

    Worth a try

    I use ZMA as well, in shorter periods. Does something good, i agree Heilette, in the beginning i used it 12 min, now i use 6 min. I use it when i eat breakfast, around 7.30 in the morning. Hope your doing well They do treat migrain with this and have good results as well. Norway and Finland, none of us have much sun, so it`s good just for energy and mood elevation. CH steal energy as well so def worth it
  7. tingeling

    Worth a try

    Hi Lately i used this one with great success, can read a little here http://www2.valkee.com/uk/evidence/science/. Not saying it will help anyone else but for me it helps. It helps me wake up and fall asleep in a normal rhythm, instead of that Cluster vampire like rhythm. Everything that stimulates serotonin, melatonin levels could possibly help us. Anyways, maybe worth a try. Helps me PFWF me Tingeling
  8. tingeling

    Mouth piece as opposed to a non rebreather mask

    Anything else than a mouthpiece is useless for me. So i guess it`s just what works.
  9. tingeling

    Carl Is Dead

    Sad sad news.... I never met him in person, but trough the board when i first joined CB and later emails i got to know him as a very helpful man with great knowledge and a big heart. It was good to read what PhilW wrote about Carl, it tells about a great man in a very loving way. Thank you. Rest in peace Carl Tingeling
  10. tingeling

    depression/end of life treatment

    Thank you for the info!! Now i have a winter project
  11. tingeling

    depression/end of life treatment

    I read about Reishi allot and find it very interesting. From what i read i understand it`s quality varies from the log it`s grown on. I found it to be difficult to grow high quality Reishi mushroom on my own. Do you know if there`s a good place to order Reishi extract?
  12. tingeling

    Chance Meeting 3 x tears

    That`s just wonderful Thank you for sharing Hug from me Tingeling
  13. tingeling

    Motivation routines

    Went to the mountains in the rain today with some friends. Doc insists i can do triptans (OMG!!), but he do think this is heart cramp thing comes from triptans, but "just" side effects like he says. So if he tells me i can do more triptans, i can certainly go for a run. So yeah, i did and i was fine. I will just stay away from any stimulants like caffeine, Red Bull etc, it brings on more chest pain and make me dizzy, nausea and gives me s little fever. But it was ok today with a short run. I truly think this is just my time to go completely away from stuff like Red Bull etc., simply because i might be able to do so. Why not, time will show Gardening is therapeutic, never tried outdoor cause of heavy allergies, but i really love being a "farmer" You folks are so motivating and fun
  14. tingeling

    Motivation routines

    Hi I have become unable to dose. I actually had some heart problems, doc think it is side effect from the triptans i used. I cannot use O2, it cramp up my heart even more. But i`m out from high cycle today i think, wonderful. Went out and had a walk and some wonderful wonderful fresh autumn air. What i do from here i guess only time will show. What i`m thinking is i have routines for shitty days, bad periods or whatever that meets us in our daily life. I have routines that only have one goal, how to make me function the best way i can today. Often this can turn the day from being like "how to make it trough the day" to be such a great day. Let`s give each other tools and share your motivation routine Being episodic or chronic, all healthy, rich or poor, we all need motivation! Share with us:) PFW from me Tingeling
  15. tingeling

    Thanks

    CHfather is one wonderful man. Thank you for being here with us
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