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Everything posted by tingeling

  1. tingeling

    Worth a try

    Hi Lately i used this one with great success, can read a little here http://www2.valkee.com/uk/evidence/science/. Not saying it will help anyone else but for me it helps. It helps me wake up and fall asleep in a normal rhythm, instead of that Cluster vampire like rhythm. Everything that stimulates serotonin, melatonin levels could possibly help us. Anyways, maybe worth a try. Helps me PFWF me Tingeling
  2. tingeling

    Once in awhile

    Hi Once in awhile i think we all get some thoughts and feelings that are hard to describe. Once in awhile i find myself in a place where i get this feeling of something, life maybe, i don`t know. Life and death. Inside in that room i`m not sure how long i`m gonna live. Or more how long my head will last me. It seems to me allot of CH`ers get heart attack. Maybe from the triptans we used, but i`m not sure, i think maybe it`s one of the CH "system failures". When your full of all kinds of symptoms, and most of them are felt in the head i wonder is it a matter of time before the blood vessels are worn out from all the pressure? I ask myself if i will know the difference between a high kip and a stroke. When my head stops to work, when i cannot think or remember or find words or forget what i talk about, i'm thinking this must be close to dementia. My brain feels unhealthy in some way. Then i feel tired, like i`m tired of living, i get the feeling i won`t live to be an old woman. Or will CH go away some day, just vanish? Most likely not. Lying like this, looking at my condition, everything feels so far far away. Can i do it, can life continue year after year like this? Life feels fragile, like it can slip away anytime. And it can, that is a fact. I tell myself that we cannot control these things. One time i read a blog about this little girl, she had epilepsy, a very difficult case, she couldn't go to school, basically she`s so sick she`s in a hospital bed all day long. That`horrible and unfair. My situation is not, actually it is the opposite. Fell asleep, woke up and felt like sharing my feelings with people who understand what a condition might bring on you once in awhile, with the only persons i know that visit the same room from time to time. I get up, make myself ready for a new day and the thoughts and feelings are left in that room, feels far far way. A short visit and we move on, like it didn't happen. Life is a mystery. Forrest Gump said his mother told him that life was like a box of chocolate. Sure is, every bit do not taste the same but their all part of life. I wish you all a wonderful day. How lucky we are I`m grateful for my life and what it brings Allot of love and hugs from me Tingeling
  3. tingeling

    Once in awhile

    Being in that room, being here and now, acknowledge and acceptance of own feelings around felt physical pain is to me not suffering and does not mean psychological suffering either, it is one of the chocolate pieces in life and it fascinates me how we can move from one room to another like that. It`s beautiful, CH has changed me and makes me want to be a better person Weatherman, that song was beatiful Thank you for sharing both thoughts and song Love and PFW to you all Hug from me Tingeling
  4. tingeling

    Worth a try

    It is a light you put into your ears, like reg earphone. I use it on a reg basis. Not sure about spectrum and lux, but reg daylight therapi has to be a certain spectrum so i guess this also is a special spectrum of light.
  5. tingeling

    Worth a try

    Lol, in Norway too ;D
  6. tingeling

    Wish me luck folks.....

    Gooooood luck!!
  7. tingeling

    Worth a try

    I use ZMA as well, in shorter periods. Does something good, i agree Heilette, in the beginning i used it 12 min, now i use 6 min. I use it when i eat breakfast, around 7.30 in the morning. Hope your doing well They do treat migrain with this and have good results as well. Norway and Finland, none of us have much sun, so it`s good just for energy and mood elevation. CH steal energy as well so def worth it
  8. tingeling

    Mouth piece as opposed to a non rebreather mask

    Anything else than a mouthpiece is useless for me. So i guess it`s just what works.
  9. tingeling

    Carl Is Dead

    Sad sad news.... I never met him in person, but trough the board when i first joined CB and later emails i got to know him as a very helpful man with great knowledge and a big heart. It was good to read what PhilW wrote about Carl, it tells about a great man in a very loving way. Thank you. Rest in peace Carl Tingeling
  10. tingeling

    depression/end of life treatment

    Thank you for the info!! Now i have a winter project
  11. tingeling

    depression/end of life treatment

    I read about Reishi allot and find it very interesting. From what i read i understand it`s quality varies from the log it`s grown on. I found it to be difficult to grow high quality Reishi mushroom on my own. Do you know if there`s a good place to order Reishi extract?
  12. tingeling

    Chance Meeting 3 x tears

    That`s just wonderful Thank you for sharing Hug from me Tingeling
  13. tingeling

    Motivation routines

    Hi I have become unable to dose. I actually had some heart problems, doc think it is side effect from the triptans i used. I cannot use O2, it cramp up my heart even more. But i`m out from high cycle today i think, wonderful. Went out and had a walk and some wonderful wonderful fresh autumn air. What i do from here i guess only time will show. What i`m thinking is i have routines for shitty days, bad periods or whatever that meets us in our daily life. I have routines that only have one goal, how to make me function the best way i can today. Often this can turn the day from being like "how to make it trough the day" to be such a great day. Let`s give each other tools and share your motivation routine Being episodic or chronic, all healthy, rich or poor, we all need motivation! Share with us:) PFW from me Tingeling
  14. tingeling

    Motivation routines

    Went to the mountains in the rain today with some friends. Doc insists i can do triptans (OMG!!), but he do think this is heart cramp thing comes from triptans, but "just" side effects like he says. So if he tells me i can do more triptans, i can certainly go for a run. So yeah, i did and i was fine. I will just stay away from any stimulants like caffeine, Red Bull etc, it brings on more chest pain and make me dizzy, nausea and gives me s little fever. But it was ok today with a short run. I truly think this is just my time to go completely away from stuff like Red Bull etc., simply because i might be able to do so. Why not, time will show Gardening is therapeutic, never tried outdoor cause of heavy allergies, but i really love being a "farmer" You folks are so motivating and fun
  15. tingeling


    CHfather is one wonderful man. Thank you for being here with us
  16. tingeling

    Disillusioning first look into CH and Facebook

    I was kicked out from a FB Clusterheadache group awhile ago, me and some fellow member in here. Have no clue why, but i suspect it has something to do with me suggesting busting all the time..... Haters gonna hate they say....
  17. Hi everyone :-* It`s been a long time, hope your all doing great! I have been training very hard for this competition and i just want to tell you how a chronic CH`er attended an international Crossfit competition during high cycle, thanks to busting. Attended Fit as Fu*k in a team of 3, to men and 1 woman. I`m from Norway and 18 countries was represented from all over the world. http://youtu.be/52CNPAuc2fs Three years (almost), after i started busting i haven`t done any shrooms in a year. Last time i busted with shrooms was before i went to the Chicago conference. After that i only used seeds. So last year it was shrooms 1 time in one year and now just maintenance. I do the RC seeds once a month. When it`s high cycle i do sometimes bust two times in a row. But that`s all. I do get shadows but who cares, right?! And some sort of pain from this CH thing i really do accept, and also should expect. The point is, i do function now and i`m living a worthy life, and it doesn`t take that much to make it stay that way. Trying to be an athlete having CH can be a bit challenging, but it only takes a bit more planning. When i signed up i knew it was during high cycle. I think i jsut sort of denied the hole high cycle and just wanted to let it solve in some way or another. And actually, i do have very good experience with doing it this way. For months i have been doing Crossfit and supplying with weightlifting at a Olympic weightlifting club. Been eating the right type of food etc etc. One week before the competition i was really bad, my head just went nuts. I was hit so continuously that it was sort of just one long hit, no sleep, you all know about how it works. Did one bust but high cycle came as it always does. Being in the situation that i did need to just get rid of the pain quickly and hopefully with as few post dose hits as possible, i chose to do triptans. I hate triptans, i really think they will kill you if you do them to often, but the thought was that if i did take tablets they would stay in the system and prevent hits for a couple of days. They affect cardio very much, that was no good for the competition, but, my choice was pain or bad cardio. Had to choose bad cardio, i decided i just had to push myself even more. I think everyone can guess what happened. The triptans didn`t work very well, and i ended up doing triptans in both tablets and shots. Lesson learned. Next year i need to start busting it much earlier The day before i got a stand in for my team in case the flight would cause to much trouble. I didn`t get much sleep the night before but i decided i would just do it, i had my clock ringing so i didn`t get any REM sleep, that work out well. Between the first and the sec heat i was hit, i managed to complete both heats and i am so proud of it. I did it well enough and i`m happy I have to say, it was FECKING HARD WORK, lol ;D So now i have carbed up again and i`m thinking of you folks that brought me this far and i really hope your proud of it as well. Next years goal is to go there as a single athlete. I bet conference was awesome and i`m soooo sorry to miss out on Potter`speech and all the great people!! Hope you all had a great time We will go as far as we want to yourself, i learned that in here. Thank you for getting me where i am today Big hug and lots of love from me Tingeling :-* PS. I was wearing a black jumper while warming up, i didn`t forget to shave under my arm, it`s textile from the jumper!! LOL ;D
  18. tingeling

    An international competition and high cycle

    Girlpower Dan, girlpower Thank you all, biiig hug
  19. tingeling

    An international competition and high cycle

    I know i told this a hundred times, but i can`t stop the wondering. I came here suicidal, CH had ravaged me for 6 years, i was in such a poor physically and psychic condition. Not a therapist or doc could have denied the amazing effect from this treatment. But most important was all and is the love and support from all the board members over the years. During the competition i had the Clusterbusters energy with me. I had you constant in my mind, reminded me of what we've all been trough and managed. When we arrived, what met me was sponsored athletes who brought their own massage therapist and several hundred people that looked like they had steroids for breakfast. All i had was a red bag with some extra clothes and food, and a fecking headache. LOL ;D This board is a group of brave people that got the courage to stand up and do what it takes. Cause the truth is that when it comes to life, not many people have the courage to make their own choices. Having this kind of group in my mind is truly the best backpack a person could have We all lift each other
  20. tingeling

    An international competition and high cycle

    It`s an honor to know all of you I finished heat 2 during a hit, i have to say, focus in mind is everything. What i think is amazing is that i actually tell people about this treatment now, and people accept it. Something has def changed, time changes and hopefully the tabu and stigma will go away in relatively short time. It seems to me it will. Let`s hope Glad to be here with you all. Thank you for the love and good energies :-* Go busters ;D Hug from me Tingeling
  21. tingeling

    A Beautiful Morning

    Meeting others from the board is such a great experience. Happy for you all. Music is such a powerful tool. Thank you Love from me Tingeling
  22. tingeling

    Herb called Maca root

    Maca root it is. I will def try this out. Thank u for passing it on
  23. tingeling

    Wonderful moments at crossroad

    Hi Once in awhile our eyes catches a moment that are truly wonderful and magic. Those moments make the time stand still, unexplainable but they do not need any explanations. Years ago i met this man at the playground i used to bring my daughter. He opened up and told me about his fear of not being able to be the man he wanted and needed to be for his wife, daughter and his two newborn twins. They had no family living near, so they didn`t have any help from anyone. He was so scared. I have been wondering about him many times. Lately more and more, cause i have never met him after that day. Today, driving in my car with the sun shining in the window, playing Vivaldi my eyes catched a man and three children. The children was smiling and screaming in joy, soaking wet, as what i assume was their father was splashing water at them with a garden hose. He was smiling and they were all looking so happy. It was a glimt of happiness. And it was that man from the playground!!! What a happy moment to be allowed to be a part of. I am so grateful for that. Out from nowhere i been blessed to get to know a person with so much depth, wisdom, compassion and understanding i never knew could excist in one person. That person gave me this song. And as always, you folks are the first and only place i think of when things like that happens. Magic happenings belongs to a place where magic happens. I love you folks so much I am being challenged, i need to go places that have been closed and i do not remember how it looks behind those closed doors. But i do know i need to open them to live life as full as i`m supposed to. I`m at a crossroad and i am very scared. But this time i choose the new path. My world is expanding and it all started here. Please listen to this beautiful song that was shared with me cause i so much want to share it with you. I wish you all, all the best life can bring you. Let it into your life Hug from me Tingeling
  24. tingeling

    dosed yesterday

    Time will show Jimmy, a stir is kind of a good sign, but anyways, it will most likely be fixed with a follow up bust. Just remember to give it time to settle first. All the best to you from me Tingeling
  25. tingeling

    so confused

    Hi Where are u from? Scandinavia or what? Try look into Shroomery, u willl get very quick reply to your answers there