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About Salander

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  1. This was posted on Cluster Headaches Facebook group on 16th of December, latest reply from Entheogen "We are still on track with the medication development process of BOL-148 and made more significant progress so that there is hope that the process will begin with experiments in humans next year. A company was found who is willing to develop the molecule into a medication and the appropriate contracts were signed." Note, WERE signed not will be signed
  2. Was this Cluster Headache Support Group as well ??
  3. I do not see it as cowardly, I simply documented what I saw. Facebook is problematic site but no matter what site it is in my opinion people must be able to talk freely. Chris started deleting this guy's very decent comments about liquorice root protocol then threw him out. Reading this thread now it seems he has done it to others as well. That is no way to make it all better for us cluster headache sufferers. If there is some sensible explanation to that which I do not grasp I'm all ready for hearing it. It is good to remember that just in life, there is all kind of people out there in CH c
  4. Exactly my thoughts when I read about fundraising in Facebook Cluster Headaches group... I have seen a lot of things happen via crowdfunding, although in smaller scale but clusterheads surely need one !
  5. I found a bit maybe a little relating so I quote our admin from our natural remedies for cluster headaches Facebook group: Memories from the nineties. On finnish TV channel 1 there was a documentary (1998-1999?) about cluster headaches (back then we had a different name for them here in Finland, forgotten by now) and it already back then described the changes in hypothalamus' size and temperature during a CH attack. What I still remember best about it is 2 details; the only group of people (except CH patients) who had these changes going on in their brain were cab drivers (!). The doctors in
  6. How awful, for a child to have cluster headaches. I really feel for him. I hope this community can help. I do not like treating clusters with current medication, cortisone (the worst), verapamil (heart drug), epilepsy drugs and what not even on adults since they are all medication NOT made for clusters and 99% only treat symptoms and bring horrible side effects (at least on the long run) and in child's case it probably is even worse. Great that you are looking for alternatives. I don't know how dangerous it can be treating a child with mushrooms or seeds. But oxygen is safe. That will deal
  7. Just wait for the groups admins to accept request to join (do not press cancel!). It may take a while since there's only 2 admins at the moment. I run the board, other people manage the facebook but I sent them a message via my mobile to hurry hurry In Finland the atmosphere towards all natural treatments is rather hostile, that's why we chose to keep our group closed. Which has turned out to be a good choice many times. Great to have more people involved !
  8. Thank you all for your kind advice. "Discontinuing" was a good tip, "taper off" or "tapering off" inserted into Google works well too. We have a lot of people from all over the world in our Facebook group already, everyone interested about natural treatments in cluster headaches is most welcome to join us http://www.facebook.com/groups/385160354828914/ Love ya folks !
  9. I am medication free myself, it was a 3 year long battle. My heart has got used to verapamil, not sure I can ever get rid of that without a stroke. I am asking for behalf of other finns here in Finland since most don't understand english, if there would be a guide, I would translate it. People are on all kinds of different meds for CH here, not just few. Thanks for your help.
  10. I am looking for a guide to detox from prescription medicine. Could not find one. Any links or tips where to search? Thanks.
  11. If I have understood correctly from what I have read, our hypothalamus (where we aim with mushrooms) is in different state in sleep and in wake state. I recall there is at least temperature changes (as in cluster attacks). I was thinking you'd like to "hit" the wake hypothalamus. Just my ideas, would be nice to have some real data or experiences if somebody has tested the same batch several times with sleep right after or staying awake. Not many would probably notice the changes in the length of their PF time though, if not paying attention.
  12. One thing I have been wondering for few years and have not found an answer anywhere on the internet so I decided to ask you good folks. Can going to sleep pretty soon after the dose weaken the effect of mushrooms when treating cluster headaches? By weakening I mean the length of pain free time mushrooms can bring when used off-cycle as a preventative. I have a gut feeling that after dosing one should stay awake and not dose at bed time for an example. In my mind clusters are married to our sleep so this might not be that far fetched. As as example (my english ain't that great so I am not s
  13. I witnessed the strangest thing today...there's a new Facebook group, "Cluster Headache Support Group" I think it's ran by Chris Hannah. Somebody posted about Les Genser's protocol and was attacked rather personally and all his posts was deleted and he "left" the group. I sensed this was something personal between Les and Chris Hannah but it seemed really odd reading the disappearing posts and now nobody gets to know about this whole protocol. I don't even want to post about anything because of this Chris dude. The amount of censorship on the groups 1st day is mindboggling and really s
  14. My oxygen bills are roughly $500 here in Finland per month (when in cycle) and about $250 per month to have a bottle just in case. It's a business built in our sickness back here. I have 2 written documents from local hospital (written by 2 different doctors) that I should not have to pay for O2 at all, it should be normal health care as a citizen in my town. The head doctor has dismissed these documents and made me pay these for years and years, I think there has to be some kind of almost conspriracy here; head doctor probably benefits in the form of money, or something. Needless to say I hav
  15. I just read a post on finnish CH site, someone had managed to end his cycle with herb called Maca root. Anyone know anything more about this? Found this with Google: "Maca stimulates and nourishes the hypothalamus and pituitary glands which are the "master glands" of the body. These glands actually regulate the other glands, so when in balance they can bring balance to the adrenal, thyroid, pancreas, ovarian and testicular glands." Source: http://www.naturalnews.com/027797_maca_root_hormone_balance.html
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