IslandStorm

Follow your instincts & wisdom & knowledge of your own body, Jimmy. Adaptation for survival. On Verapimil you wrote on November 21st: "...it makes me feel very "off" and like I'm going to have a heart attack or seizure. And I feel very nervous exercising or exerting myself while (I) take it. " Being active & outdoors on average 2+ hours/day is the game changer that shifted my "new normal" for my Chronic CH. We are all unique physiologically & changing too. Exercise sounded insane to me 16 years ago when I had Episodic CH. When you are able to go 5 days without meds that are blockers (& cause rebounds) it may be possible to try busting again with better results. Have your O2 ready & cold caffeine if a CH hits. Ginger soft gels & CBD/THC help me with nausea. Still busting every 7 days since starting out with every 5 in September after getting hit at the CB Conference & getting rescue O2 & compassionate support & encouragement from our CB family. Grateful. Best wishes.

Appeal the denial by calling the insurance co. and request a doctor to appeal on your behalf. Sending the peer reviewed O2 effectiveness studies ( links found by searching for O2 on this site) for your doctor to refer to when appealing the denial will be helpful. This process of persistence took weeks with successful results and Apria finally delivered O2 to my home to be able to battle my upcoming episode.

My 11 year old ( at about 66 lbs) has been on 5000 IU (Now Softgels) Vitamin D3 for the past 1.5 months for boosting immunity. I put it in yogurt and granola at breakfast.

Thank you for your help Pebblesthecorgi & Racer1_NC & Batch. Ordered transfiller from http://www.deltaoxygensystems.com/id125.html at Batch's suggestion. Correct fitting pictured for larger tank was not included & is hopefully in transit now.

Searching for a Transfill valve to fill E tanks with welder's O2 to prepare for CH episode. First time O2 use & hoping for reviews of Transfill valve models. Thank you.