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Cluster Dave

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  1. If you want to send an email address there is a hide button. I can send you a photo of what I bought. Batch has reviewed what I have been taking. Dave
  2. Hi Kate - here is a good starting point. Take daily. https://vitamindwiki.com/Cluster+headaches+substantially+reduced+by+10%2C000+IU+of+Vitamin+D+in+80+percent+of+people Dave
  3. Here in Canada if I was caught with MM's would probably be a small fine and if a judge knew why I was taking them would probably be the smallest fine he could give, so not to concerned about that aspect of taking them. They work well for me on most cycles but once in a while a cycle comes along like the one I am in now and they don't work at all for me. So now I am going around in circles with prednisone and Almotriptan both of which are short term fixes which are not good. Still looking for another option, I started the D3 regime a week ago but so far has not helped. Have you tried the D3 regime ? Thanks Dave
  4. Wow sorry to hear that, do the MM's help with the pain level and O2 take care of the rest ? Dave
  5. I have added Benadryl about 10 times here and there but I have yet to notice any difference. Thanks Dave
  6. Hi Spiny Glad to hear that the D3 regime is working for you as well as your other precautions. I am on day 6 of the regime hopefully it kicks in soon as I am still suffering. In the last 5 years MM's have helped me tremendously even though looking back 5 years ago and 2 years ago there is a cycle that comes up that nothing seems to help. Like the one I am in now which is the worst I have ever experienced and the longest lasting as well. Hopefully the D3 regime can help on this cycle. Still taking Almotriptan otherwise it would be one hit after another all night long. Thanks Dave
  7. What is keeping you PF, mm's ? Thanks Dave
  8. Has anyone ramped up on Verapamil and Triptans as opposed to Verapamil and Prednisone ? Thanks Dave
  9. Wow Spiny and devonrex are you both chronic or episodic ? I took Almotriptan for the beast and Tegrotol for the TGN pain last night and it bought me a straight 4 hours of sleep. I am on my last week of vacation time before I head back to work so I have to get a handle on these, going to call the physician for Varapamil. At least get the prescription and have it on standby. Full on with the D3 regime with Batch, he has been fantastic in helping me. Hoping it helps before I have to try Varapamil and the dreaded prednisone. Dave
  10. Last night I had a headache with extreme facial and trigeminal nerve pain that lasted for hours. Normally my cluster headaches last 40 minutes from start to finish then I get a break until the next on hits. Not this time though. Had to do 2 rounds of O2 before any relief where as usually 1 round of 10 minutes will provide relief. Has anyone heard of a cluster headache lasting hours, I haven't so there is more to this cycle, has anyone else come across headaches that last hours and if so what was the cause ? Thanks Dave
  11. Surprised me too. The good part is this morning as the prednisone is wearing off the medication headache and the cluster headaches have been good. Not expecting that to last long but I am getting a 4 hour break that I have not had for a long time. Wondering if the Imitrex that I took the night before (2 doses) I had anything to do with it. I started the prednisone the next day ?
  12. Took 1 tablet 50mg headache started about an hour after and lasted 22 hours with cluster attacks on top of the medication headache. That was the day one of the seven day prednisone treatment but I am afraid to take the day 2 tablet. Maybe wait a day or two before starting. Would rather just have the cluster headache than both. Maybe need a day or two to cleans my system. Thanks Dave
  13. Thanks SECauthentics - that is the link and image I took to the pharmacy and was following. D3 - 50,000 to be taken daily for one week to ramp up. Then back down to either 50,000 per week or 10,000 per day. Dave
  14. Thanks Spiny - I think the confusion came with my terminology. I used the term ramping up and I meant that for ramping up on the D3 regime and the 50,000 IU daily for one week. Then back down to 10,000 IU daily. In the same post I was asking about verapamil since I have never tried it and thought since I will be on pred for a week might be a good time to try it. Yesterday and all night was bad. Started the prednisone at noon with 50mg. Had a headache for 22 hours. Prednisone headache with cluster headache and TGN pain poking through hourly. O2 took care of the cluster/TGN but the prednisone medication headache was continuous for 22 hours. Not sure whether or not to continue with the prednisone? Thanks Dave
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