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maskedmarvel

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maskedmarvel last won the day on October 26

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  1. Aaaanyways I'll probably be turning of notifications for this thread now. Wishing everyone the best
  2. So based on what I am reading on pubmed etc, going from episodic to chronic is pretty rare. Idk, it also kind of seems like anyone who is prone to headaches around this time (including a friend of mine who gets migraines) is having a particularly difficult month.
  3. Yeah sometimes.. That and I also keep hoping that based on my past patterns I can reasonably expect this to be over soon since we are coming up on 30 days.. I had one that wasn't too bad on Friday but it lingered around for about 4 hours which is not usual for me.. Find myself wondering what that might mean and I am also unsure about how taking MM again now might affect the rest of this cycle.. I spoke to Dr Gawel today and he recommended I not take them again and let it run its course unless it gets really bad again Kat, I am in total awe of the strength that chronic CHers must ha
  4. Thanks Kat I did in my other post... My cycles seem to come just short of every 2 years.. Times when I didn't know what it was and it was left unchecked IIRC lasted about a month. Last time, when I found this site, it lasted less than 20 days and I used MM 3x.. I have been on the vitamin D protocol for about 2 weeks now (was helpful last time too). This cycle started some time near the end of September. I have taken MM 4x about 5 days apart. Last time I ate MM I had almost 6 days of no attacks but got some border line shadows.. Since then I have gone about 24hrs between attacks an
  5. Sorry for making yet another topic.. I'm sure to chronic CHers I must seem like a drama queen. I had almost 6 days free of attacks (scary shadows on days 4 and 5 though) after eating MM for the 4th time.. Then had an attack this morning. I'm out of MM and am just feeling so disappointed and uncertain now. My last episode only lasted less than 20 days thanks to info I learned here.. Its now been at least about 25 days for this cycle.. Previous cycles when it was left unchecked seemed to last about 30 days maybe. Trying to tell myself that this has to be over soon based on my previous patterns.
  6. Been taking about 3-5000 IU per day for most of this year.. Started taking 10,000 IU after reading this. Its been over 72 hours now and still feeling good. Talked to Dr Gawel.. The call lasted about 10min.. Basically just telling me what pharmaceutical options for busting exist. He asked me where I got my mushrooms lol... I asked when I can know the cycle is over and he just said when the shadows are gone. I can be a bit of a hypochondriac and it seemed like I was getting shadows for weeks after the last attack last time... Last episode lasted about 3 weeks and I also didn't go 72hours without
  7. Episodic and seem to get them every 2 years or maybe a bit less. Started late September.. Was fairly mild for the first week or so.. Ate mushroom near the start when I wasn't sure if it was the real deal or not. .. and then ate them on October 6th and 11th.. I thought it was maybe over a few times.. Had a slap back(?) On the 13th and only a couple very mild ones about 24 hrs after that.. Felt like I was in the clear yesterday. Then woke up with one at around 1:30am that seemed to escalate slowly.. It honestly still hasn't really left now 4 hours later. I have an appt to see Dr Marel Gawel from
  8. Yeah in this most recent cycle (please be over soon) I have been doing the breathing when I get an attack... Seemed like a Miracle sometimes and others not so much... I think the execution matters... I have found that when i really wait those extra seconds to breath and push my limits, the pain goes away and the level of the attack stays lower.. Are there any negative effects of doing the breathing too much? I have been "saving" it for when I get an attack rather than doing it regularly in the morning etc.. Would it be better to do both? Also wondering if it can change the length of the
  9. I was asking about the article, but you'll probably have to actually read it if you want to form an opinion on it .. or at least hear the premise of it. Like I said, it proposes a theory of why clusters happened and compares them to earthquakes on the earth. ELDOA is a lot more than just a vagus nerve stretch.. or stretching in general. MELT Method, Feldenkrais, and other methods of releasing chronic tension (something almost everyone lives with now and considers normal.) have become a way of life for me and I feel pretty sure its had an effect on this situation. Its common for a person thes
  10. Its such a difficult thing, please don't beat yourself up.. I am not married and have no advice but I just wanted to say I feel for you and wish I could help
  11. Ok thanks.. I was thinking like, what if my cycle is over and I eat some.. No evidence for that just being paranoid i guess
  12. In the last sentence of my post there, I was referring to the hypothesis of what causes CH, not cranio sacral therapy as a cure.
  13. Episodic and last time I had shadows and thought i was going to get another one for at least 2 weeks..
  14. Hello, I seem to get them every 2 years or so... Last time was Christmas 2018 and about a week ago I woke up with a headache that was in the ballpark of a ch.. I just went 27 hours without one and it was less intense than the previous ones.. I ate a small amount of mushrooms about 5 days ago out of "an abundance of caution" which i guess helped. Not sure if I should eat shrooms again.. Has eating shrooms ever made them come back again? Probably just me being paranoid.. I am also worried that this might be some kind of mini episode and it might still happen again around Christmas.. Is tha
  15. Geez.. 48h without one. I just woke from a weird dream where I was crying uncontrollably.. I woke up with a 50% headache.
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