Tsmith

Shaun, I am about to begin a tryout with gammacore. They have a patient assistance program where you get the device for 90 days for $450 when a doctor submits the presecription - no insurance coverage. Like most people in this group, I have tried everything esle, so will give this vagus nerve stimulator an attempt and see what happens. Here is a link to a Preva study done a while back with gammacore. https://neuronewsinternational.com/randomised-data-show-gammacore-significantly-reduces-cluster-headache-attack-frequency/ Terry

@kat_92 Hi Kat and Thanks for the information on your D3 progress. Yes I did try benedryl for a 10 day period, but didn't see any results. I am currently doing Quercetin in its place. I haven't done an MM bust in over a year, but even then didnt see a change afterward. My chronics continue but somewhat less than before D3. Tsmith

@xxx Hi Batch and Everyone, A couple of updates on the D3 regimen. I get my labs through Compunet and the results they give back for D3 at the highest level are shown as >150, but do not give me a specific number above that. My Dr. replied that this was all the lab could do. So now I need to find out if other labs might provide more specificity and inform my Dr. about this. On the Ratio test, I have not gotten this one, but my Dr. said this could be done with a calculation using the current data. Are you aware of this approach? I am still waiting to hear back on this one. I'll do basic another lab in January: D3, calcium, PTH. Basic daily feedback: still having headaches 1-3 per day. Exertion and cold tempperatures often bring them on, but not always. Every now and then I get one at night that wakes me up, usually around 1 or 2 AM. Frequency and severity are definitely decreased. Thanks, Tsmith

@xxx Hi Batch and thank you for your response. I am taking all of the supplements you have recommended in the photos as well as additonal zinc. I am scheduling a lab for early next week. Were you suggesting an additional lab test to add to the D3, calcium, and PTH? I can also try adding the NAC suppment you suggested. Tsmith

@xxx Batch, I'm doing the list of supplements described in my last post and so far have not achieved a pain free level. I am having fewer attacks and of less severity. I did a 100,000 D3 for 3 days as you suggested and am now back to 50,000 daily. I forgot to mention in my last post that I take daily heart medications: 20 mg avatorstatin and 30 mg lisinopril. Any chance that these are having an interaction with the supplements? I'll be doign a lab in two weeks. Thanks again! Tsmith

@xxx Thank you for this information to adjust the regimen. My change now will be: D3 - additional 50,000 for two days Turmeric - up from 2 pills to 3 Omega 3 - up from 2 to 3 pills Boron - adding 6 mg per day ( I have ordered this). Probiotic - ordered Zinc - ordered. Diet: I am stopping anything sugary to include foods with added sugar on the label, etc. Alcohol - two glasses of wine per day Water: 2.5 liters per day I have a lab coming up in a couple of weeks. I am using the specific products you listed. Thanks again. Let's see what happens as far as achieving a pain free level with these changes. Tsmith

Hello Everyone, I have not reached a CH pain free point and I have been following the Batcheller D3 regime for 6 weeks now. I have noticed a slight change in frequency of headaches and less severity. Before the regime I was averaging 3.52 headaches per day. Now the average is 2.28 per day. I still use O2 as needed and it always aborts the CH in about 10-15 minutes. Here is my data. Before starting regime: Lab: My Serum D level was 24. For 6 weeks I have been following the D3 regime with 50,000 IU D3 / day + all cofactors as recommended by Dr. Batcheller + Coenzyme Q-10. I am still on this level of D3. Days 8-17 added Benadryl (stopped after 10 days) Day 12 added Vitamin C Day 32 added Quercetin Lab: At Day 32 Serum D level - 150 (Calcium + PTH within normal range) Day 35 added Resveratrol Day 36 added Turmeric I will be getting another lab following the previous lab at a 4-week interval to see where my D3, calcium, and PTH levels are. My headache doctor is on board with this and watching to note the results. So my question -- I am looking for what I might do next? Is there an additional cofactor to add? I intend to keep up the regime as it is now with D3 50,000 per day.