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Blitz

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Everything posted by Blitz

  1. For me it has to be loud. Unexpected noises effect me more than noise in general when having an attack. Lately I've been going to Jinjer.
  2. I had a headache specialist neuro who himself was diagnosed with CH from 2015-2020 but he died from the pandemic. It was the high flow oxygen. I am trying to wean myself off relying on energy drinks because of my kidneys. Yes I know its give and take. The best thing I've found is massive B vitamin energy drinks. I mean other than cocaine.
  3. Oh I've been diagnosed for 13 years. Tried it all. He is actually a pain specialist because I broke my neck a year ago. I'm one of those people that oxygen doesn't work for and much of the other stuff can't be done because of other health problems that disqualify me. He thinks he's helping, I know he does. He just doesn't get it. I'm ready to just ask him about prostate cancer treatments, so when he asks "Why, you don't have prostate cancer", I can respond that i don't have migraines either. Until I can convince them my other problems have been misdiagnosed I can't really proceed and I know that. Pretty much my regimen is cussing and blasting music and eating zip fizz.
  4. How do I get my doctor to stop talking about migraine treatments without being rude? Every time he says "I heard such and such is working for migraine" i just want to strangle him. I have said countless times that CH is not migraines. I'm at my wits end here.
  5. Hey, sorry about the cluster, as we all know they suck. As one of the unlucky ones that O2 doesn't work for there is 1 go to when i can no longer just pace/cuss through them. I rarely use it because..... well you'll see but it does stop an attack for me. I slather my face with capsaicin cream and take a hot shower. Just make sure to keep the cream out of your eyes and get ready for the sensation of dipping your face in lava.
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