Long Night

[Jbrigham]

I have a few different medical issues, the major one was endometriosis. My specialist recommended a Lupron injection that would last for 6 months.  once I took it there was no way to get it out of my body for now the next 4 months.  The past few days have been horrible.  I can generally tell a cluster cycle by how it starts.  one a night abut 2 am every other day for a few days then one a night and it gets worse from there. 

In 3 days I have gone from one nightly to 6 last night.  I have my O2 tank but after last night it is almost empty.

I am thinking that the Lupron treatment has made this cycle worse.  I normally only get a cycle every 1 and a half either in March or Sept. I haven't had one in over a year now and was totally unprepared for this to begin.

I am not able to find anything on Lupron and clusters and not sure I can take it if this cycle gets any worse.

I am just trying to find any information or help right now. 

[tom]

Hi J,

I don't know what to say other than hang on in there and get medical help asap.

I see it's a week since you posted this message so perhaps you could let us know whether you're OK.

Sorry for not replying sooner.

[MrsRobinson]

I take the lupron shots, but I'm here because My Husband is a CHs sufferer.

I would get off the Lupron asap. Have laprascopic - which i did before the lupron. I have endrom & fibroids  - massive. Very painful and x2 periods per month for 10 days.... to say the least - not much fun. Laprascopic is slightly invasive, but I was up and around 2 days later. And lasted for 5 years.

My prayers are with you.

deidre