scwaters Posted August 27 Share Posted August 27 I had episodic Cluster Headaches from 1968 until 1995 and then. . .around five years after my last headache I experienced a full 40 day episode in the opposite side of my head to include Horner’s. Strange. It has been ten years without any episodes. Has anyone experienced ahis? Seven years ago I was diagnosed with Parkinson’s. I was exposed to Agent Orange in Vietnam. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted August 28 Share Posted August 28 Others have reported remissions lasting several years, followed by a sudden surprise episode out of nowhere. This is a scenario where the CH'er typically is caught off guard, having been lulled into believing the shenanigans could be completely over and done with, never to be revisited. Switching sides (even after decades of always being same-sided) is also a pretty widely reported phenomenon. Quote Link to comment Share on other sites More sharing options...
m9ndfcuk Posted September 14 Share Posted September 14 Back on this board again! 23yr Cluster Sufferer in UK, currently only on O2 for treatment I have had a similar thing happen, Im back here after 2 years remission, and they are back but different, much more in my sinus and throat now, with the pain, still excrutiating, I have high flow oxygen and am using a tank a day. The swapping sides has happened once to me, when I tried a low dose 1.75g of mushrooms infused in a tea. I am usually right side affected, but the cluster swapped sides and was easier to deal with as my right side was very painful from shadows then. hope that helps. 1 Quote Link to comment Share on other sites More sharing options...
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