urielkramer Posted September 17, 2016 Share Posted September 17, 2016 I think this story is a bit different.. My name is uriel , 32M, from Jerusalem, Israel. Had short cycles every 2-3 years since 11 years ago, never cared to much, not even enough to get checked. Since 30 days ago im in a cycle that i've never had before, the kind the DOES make you go check... Attacks every 48 hours of 2-5 hours, pain level 3-7, consistent, stubborn and long cycle, far longer than ever before. I was emotionally shocked- I suffered PTSD from violance in childhood and I can feel the similarity in the emotional symptoms, like many of you - I have seen a lot in my life, and i can clearly say that this is the most traumatizing experience that i've had in my adult life. once i realized that my symptoms are of CH, I started trying: Mushrooms, LSD, Magnesium, and other stuff - nothing changed in a way that was close to satisfy me. Then, 8 days ago, I started taking 3 "Kudzu" (81mg) a day, and with first signs of pain - I drink half a "Red-Bull" and im extremely happy to say that the both pain levels and attack lengths have reduces about 90%! (attack last 20minutes-1 hours and pain level is 1-3, frequency went down only 10-20%) But here's where the story is twisting. 48 hours ago i suddenly felt an extreme "sugar-level-drop" that led to almost fainting and I had to sit on a sofa and couldnt really walk for an hour, friends bought me some food and after about an hour i could walk again, then - yesterday i felt weak, dizzy and disoriented but not "faintish". then felt good again, then today- again - an "attack" of this weakness that almost made me faint. had to sit in a coffee place for 30 minutes till i got the courage to try walking again. so.. im confused... what is happening to me ? i couldn't see this symptom in CH-cycle symptom research, and no "Kudzu" side-effect related from what i've seen. I do have some loose ends. Seems to me that this feeling is triggered 2 minutes after the first feeling of hunger in the stomach. for some reason I have this feeling lately even 1 hour after a meal, so sometimes i would just eat a piece of bread to prevent this feeling and triggering this "weakness attack", and I can also say that I think that this hunger feeling is also a trigger for my CH attacks. so... something about my digestion system ? i've read that CH is related to the Hypothalamus in the brain which is also related to hunger/thirst sensations... I will see doctors within a few days and go for CT scans for the first time. But when I put it all together, I see a CH cycle like never before, and now these extreme "weakness" attacks...so i wonder if there is something more that only CH which is happening in my brain right now. anyone has any idea ? ever heard of similar symptoms? any one know of a Hypothalamus for sale? 2nd hand is fine thanks a lot and thanks to whoever made this forum! 1 Quote Link to comment Share on other sites More sharing options...
timmyy Posted September 29, 2016 Share Posted September 29, 2016 Who gave you the diagnostic for CH? Quote Link to comment Share on other sites More sharing options...
urielkramer Posted September 29, 2016 Author Share Posted September 29, 2016 As far as i know, the only way to diagnose CH is by telling the doctor the symptoms, and him saying: yeah... It's CH. Am i wrong? Quote Link to comment Share on other sites More sharing options...
timmyy Posted September 29, 2016 Share Posted September 29, 2016 I recommend you go to a specialist with experience in headache that make a diagnosis.Then perhaps give first opportunity to conventional medications, that can definitely help. Quote Link to comment Share on other sites More sharing options...
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