amyorr Posted January 28, 2017 Share Posted January 28, 2017 Good Morning. I am a long time CH sufferer but consider myself lucky. I experience Clusters every 2 years for about 3 weeks. The time period shifts on my usually due to stress, I can only assume. I have been to a neurologist and have finally convinced my physician to prescribe Oxygen. I successfully use Oxygen and Immitrex to abort most of my clusters. Here is my question - 4 years ago, i used Verapamil (240mg - two pills a day) to successfully prevent my CH from occurring in the summer. But, two days after I weaned myself off of them (during Christmas break - a low stress time for me as I am a teacher), they hit in full force and I still had 3 weeks of Headaches. Damn. Two years ago, I did not take the Verapamil, but once my cluster began, I started my Verapamil and my cluster was more manageable, fewer attacks and less extreme. This week, I experienced 2 mild headaches ( stressful time of year). I started my full dose of Verapamil and they stopped. Now, I am stuck wondering if I am simply delaying the inevitable....I ordered my tank and drugs and am ready to face the beast. Do I just wean off the damn Verapamil and let it happen? Has anyone else experienced this delay? Do you have any advice for me? As a teacher, I am not interested in illegal drugs as I can manage the symptoms without it. Thanks so much for any advice. I have often read these boards for advice over the last 20 years and feel very thankful to have people in similar places with this stupid disorder. Quote Link to comment Share on other sites More sharing options...
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