alaskagirl1978 Posted October 9, 2017 Share Posted October 9, 2017 I have to start of by saying that I have never ever tried any medication. I fear the side effects and for the last 4 rounds I have had I just suffered through. every 5 years for 3 months. I peak at about 8 a day (lasting 20 mins to 1 1/2 hours) a day. I do that for about 2 weeks and start the downward slope. I don't know if it was because I am older. They were harsher or I just couldn't do it anymore but I couldn't just suffer through them this time. I was starting to get depressed. Feeling helpless and thinking I just couldn't take it anymore. So they started with steroids (i did get a referral to a neurologist, he can get me in around xmas). Anyways so 60 mg a day for 10 days then the taper starts. The headaches were much better from day one. They still came but much weaker. After 10 days they completely stopped. I started my taper concerned that they would return but they didn't. Until 24 hours after stopping the steroids. I was down to 1-3 a day by this point. And they started the Verapamil. Low dose of 120mg. Once a day. Also, I got some oxygen tanks (that was harder than I would have expected) I am almost positive I can find heroin easier than oxygen but let me tell you. It was worth it. Best thing I have ever tried for these terrible headaches. So 2 weeks in with the verapmil and I schedule another appointment because I am thinking we need to up the dose There was absolutely no relief. I make the appointment and a few days later I am in. Only by now. They headaches are so weak that I just lay down for a few minutes and they go away. So we didn't end up upping the dosage but decided to wait it out. Now three weeks in and I can feel the pain on the side of my head. No eye pain or jaw pain (which I get pretty bad) and they are so mild that I don't even notice them half the time. So officially 5 days headache free. I am going to take the verapimil for the next two months and then taper off. Fingers crossed that they don't return but I can say I will never try and "suffer" through these again. Quote Link to comment Share on other sites More sharing options...
spiny Posted October 10, 2017 Share Posted October 10, 2017 Welcome alaskagirl! It is nice to know that you finally got some relief! Yes, O2 is your best friend. And it can be very hard to get, which is stupid. Suffering thru these is hard. Finding what works for you is important. Good to know that you now have a plan for the next cycle!! ATB Quote Link to comment Share on other sites More sharing options...
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