Patient community in Finland - Suomi

[Tony Only]

I thought I would create a post here mentioning the finnish terms for cluster headache and some information so other patients in our country are able to find us if they use google for an example.

The exact translation of Cluster headache in finnish is Sarjoittainen päänsärky. Never liked the headache part in it. So many of use Hortonin neuralgia (Horton's neuralgia or neuralgy in english - this term is used a lot in literature over here) or Hortonin oireyhtymä (Horton's syndrome) which to me is the most "correct".

We have a need for association but so far there is only a patient community that can be reached in Facebook - it's called Sarjoittainen päänsärky. There is a fairly large member base at the moment around 1400 finnish clusterheads. And we have a little clusterbusting secret society somewhere, so I have heard.

I have a little site in finnish but it's just information gathered in one place and would need good structure and a "real" website as well. I hope one day I can finish finnishing the Clusterbusters Method there completely, then it can be freely used here at the Clusterbusters website for an example. As a resource for new finnish patient just diagnosed there is an excellent blog that offers knowledge and things to think about that are essential for survival as a CH patient in Finland.

I thank everyone at Clusterbusters for being alive today and for any finnish clusterheads wandering to this post - join the community ! PF wishes 

Edited November 20, 2018 by Tony Only

[Tony Only]

I did not think very brightly when I posted that since this is a member only area, but we should start reaching finnish clusterheads now better anyway; we have founded Horton Association Finland on 17th february this year. Cluster headache is also called Horton's syndrome in Finland, name we actively aim to use instead of a term "headache". We are here and here  PF wishes everyone !