DeYo91 Posted December 4, 2019 Share Posted December 4, 2019 Does anyone have a good recommendation for a Neurologist in Santa Barbara or Ventura CA? I contacted a few off the recommended doctor list in Los Angeles but was unable to find anyone who was accepting new patients or practices in the area consistently enough to see me in a timely fashion. If I find anyone on my own who seems to be solid, I will be sure to post on here and let you all know. Thanks everyone! Quote Link to comment Share on other sites More sharing options...
DeYo91 Posted December 5, 2019 Author Share Posted December 5, 2019 OK! So interesting turn of events for those who may be following here: Dr. Alan M. Rapoport, M.D. who is on the list of recommended doctors emailed me back right after making that first post. He recommended a doctor in Ojai, CA by the name of Dr. Brigitte Lovell. I called the office and they said she was booked out for months. I told the receptionist how urgent it was that I be seen due to the severity of the headaches and she put me on hold. She came back on and asked if there was anyway I could make it in right then. I got in the car and drove straight there and was able to be seen even though it was right after closing hours. She seemed like the first knowledgable Neurologist I had seen in regards to CH. I told her about my oxygen, MM use, etc. She prescribed me a new medicine that was recently approved in the US for CH use called Emgality (galcanezumab-gnlm) Injections. I guess you do three shots of 100mg in the same day once a month with little to no side effects. Anyone know anything about this? She also said it would not inhibit the effects of MM and shouldn't interfere with any of the other abortive techniques I currently use. I have the shots and am planning on trying it tonight. I will let you guys know how it goes. If anyone has any info on this I would love to hear before I shoot myself up with some new medications! Quote Link to comment Share on other sites More sharing options...
CHfather Posted December 5, 2019 Share Posted December 5, 2019 That's a nice story. Glad it worked out. There are several threads here about Emgality. You can find them by typing emgality into the search bar at the top right of any page. Mixed results, but it's good to see that you got the right prescription (three injections). We will all look forward to hearing from you how it works for you. Quote Link to comment Share on other sites More sharing options...
DeYo91 Posted December 12, 2019 Author Share Posted December 12, 2019 So far I have had a few headaches that vaguely resemble CH i.e same pressure, left sided, but without much pain at all. Resembled a normal pressure headache and was able to function through them. I will do the alcohol test this coming weekend and am going to see if a proper CH is induced. Emgality is an interesting drug... I can't tell if I am still in cycle but attacks are being blocked from the drug or if It knocked me right out of it. We will see! Quote Link to comment Share on other sites More sharing options...
CHfather Posted December 12, 2019 Share Posted December 12, 2019 Thank you for keeping us informed, DeYo'. Quote Link to comment Share on other sites More sharing options...
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