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Showing content with the highest reputation on 08/31/2020 in Posts

  1. 2 Weeks Away from the 15th Annual Conference! Like everything, we're going virtual this year. Make sure you register in time to receive your welcome bag in the mail. Speakers & topics are listed online and also in the images below. Register: https://clusterbusters.org/event/15th-annual-cluster-headache-conference
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  2. I'll keep posting our awesome speakers and their presentation topics in this thread.
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  3. Is there any information on times for the agenda? I'm assuming it's throughout the day, not at night? I can't take off two days from work, but I'd like to add some of the sessions to my schedule. Thanks.
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  4. Hi Nick, Unfortunately you will have to take into account that this can indeed be a lifelong adventure. I once read a study about this and that is what I remember: An early onset has a higher chance on an early termination. If you get it later in your life, then it will probably also take longer Many doctors will say it goes away once in later 40's or early 50's. There is indeed a tendency to longer remissions (several years) once over that age but from what we see here in this forum, many come back in their 70's having attacks again after having 10, sometimes 20 years of remission. After many years, most patients come to a point they learnt to deal with it very efficiently and so they do not need help anymore from doctors or specialists at later age If I look at myself, I got my first migraine attack when 12 years old, now I am 51 and still no signs of stopping. So that is 39 years and that as a man ! Migraine is called a women's disease ! Then at 43 yrs old, I got suddenly plagued with Chronic Paroxysmal Hemicrania , the female version of CH. So I would say, never take these pain free periods for granted and do not count on a "magical recovery" but think seriously about a strategy on how to deal with this the best you can. All the best ! siegfried
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  5. Interesting. Thank you! And any study that inclines toward greater acceptance of LSD as a therapeutic agent is to be celebrated.
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