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Showing content with the highest reputation on 12/16/2020 in Posts

  1. Mastermerls, Sorry, but I got a chuckle reading that you cover your eyes while working on the PC and watching TV. ha ha. I'm sure you meant something else. I worked with some programmers years ago, that I swear they did the same thing while programming. When their code worked, there was no way of figuring out why... ha ha.. I'm glad you're getting some pain free time, but I'd be very skeptical of any type of glasses stopping our CH. From research our condition is related to an inflammation response. Hence the reason O2, Prednisone etc do work. Brain scans have shown the Hypothalamus in our brains is all messed up during an attack. That our brain is actually triggering the episode. Also, the hypothalamus controls our circadian rhythm (when to wake, sleep, eat, sex etc). That's the reason our attacks are typically very regular (though as you've pointed out, food and smells, among other things can be a trigger also). Keep us posted how you're doing, but don't rule out that your cycle may have just stopped at the same time as well. 20 years ago I tried verapamil and my attacks stopped. I thought it was a miracle cure. The next year my attacks started I went back on verapamil. Nope. Didn't to anything. I figured out that the first time my cycle must have just ended at the same time I started the verapamil. Cheers. J
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