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Showing content with the highest reputation on 08/16/2024 in Posts

  1. Greetings from the "Mile High" here in Denver! I was diagnosed with CH about 15 years ago. In that time, I've found quite a bit of relief with "traditional" methods (verapamil, steroids, melatonin, etc). Usually my cycles are limited to 1-2 times a year, 4 weeks per cycle. But in recent years, I've noticed a more pronounced connection between my headaches ... and my *nose.* Instead of a sudden onset of pain, following those "set your watch by it" cycles ... It's more of a lingering "on the edge" of a CH pain, that is always sourced to my left nasal cavity. It feels as if there's a nerve being triggered every time I breathe in. Sometimes that pain will advance to a full "attack," other times it's just an all day "on the edge" feeling. I mentioned this to my Neurologist, and then went to an ENT Doctor, who right away asked about "Sluder's Neuralgia." I've since had septopasty for a severely deviated septum. Not sure if this might help. I'm just wondering if anyone else has experience pain and CH that are triggered *in the nose* and what your experience/treatment/outcomes were? BTW, I'm also a morning news anchor out here in Denver, and had a GREAT time showcasing the work of Cluster Busters for an on air segment! Thoughts, advice, comments? Cheers, Chris Parente
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  2. I remember the segment! You did great. It was of course shared here on the site. I can't say that any of my experiences have included anything with the nasal passage but it does remind me of a recent post on here about another condition called Charlin Syndrome?
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