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I think venting when things go badly (in your case, really really badly ) is a good thing to be able to do here. It may be a bit much to hope for, but sometimes, some of us have been known to get a one-off rogue attack, with no new cycle starting up. I'm hoping against hope that this is what could have occurred with you today.

I am very curious to look at your work, but because my daughter has CH, I try to avoid the more vivid reminders of what it's like. I wish you the best.

Sorry, but you definitely won't find any sadness from myself over the butchers demise.....and his clinic closed after he was arrested for the murder of one of his patients and his license was revoked!!

@CHfather Thank you! I'll look into it! And I'll share my work as I go along. In the meantime I'll just share this purely artistic rendition I did after my last major cycle. I know it doesn't have the signature droopy eye but I wanted to convey how much pain I get behind my eye. https://www.instagram.com/p/C1tI2uBN7R4/

Horrible, horrible, horrible. I am very sorry, and that interviewer should be fired, the bastard. I think it's obvious to us that even looking for work in your current situation is practically heroic. Gotta ask: Are you doing the D3 regimen -- that really makes a big, big difference for most people -- and have you managed to get oxygen? And is this common for you -- a remission period of maybe a couple of weeks and then the attacks come back? It's not clear to me what you mean when you say "The 5 day rule failed me." I remember that at one time you were taking relatively small doses. Am I right that you kept dosing during this remission time? If you want to say more about what you have done, maybe it'll help.

I suppose "satisfactory" is the key word in what you wrote. Certainly there have been possible explanations offered, particularly with regard to REM sleep (Exploring the Connection Between Sleep and Cluster Headache: A Narrative Review - PMC). According to one study (attached here), 2am is the most common time for attacks, but midnight, 1, and 3 are right up there. (Rather than a specific time, it's probably more accurate to say ~90 minutes after falling asleep.) (At least as far as I can tell, the attached study actually tells us almost nothing, since of course people get multiple attacks and they all are counted here.) However, as many as 25 percent of people with CH don't get nighttime attacks, and the number of reported attacks (in the study) at 2pm and 3pm (outside the time range of your theory) isn't all that much lower than the number at midnight or 1am. Well, but why would it want people to be awake and experiencing excruciating pain, or use excruciating pain to wake them? And why, if maybe we all, or most of us, have a biphasic instinct wired into our brains, are so few people afflicted with CH (or just generally, why do so few people wake up, with or without pain, at those early-morning hours, or ~90 minutes after falling asleep)? And why does a daytime nap so often bring on an attack? These questions are not to dismiss your idea, which I think could be part of the puzzle, but to say that there are surely more complex things going on and to agree with you that it would be nice if there were "a neurologist specialising in both sleep and cluster headaches out there who latches on to this." Of course, there are whole cultures that have a biphasic sleep pattern, though not exactly the kind you have been referring to. A siesta in the afternoon along with some nighttime sleep (usually less than 8 hours) is pretty common in many Latin American and European countries. I guess someone could look at CH incidence among those populations. Rozen - Cluster_Headache_in_USA-2.pdf

Hello, Megan. I hope this works out for you! The only existing graphical things I can think of are the things you can find with a straightforward Google image search. There are several large surveys of people with CH, one done around 2011 by Todd Rozen and others, and another from fiveish (??) years ago by Larry Schor and others. I think you'll be able to find these by googling. They have some graphics, but I'm thinking might be a lot of information in there that could be converted to the kinds of graphic formats you mention. ClusterBusters has led a recent large-scale study that I don't think has been published yet. I'm not sure how much that study is focused on the use of psychedelics to treat CH; the Rozen and Schor ones were most about demographics and how people experience CH. I'm sure you're also aware that there are several books at Amazon about understanding and treating CH. I don't know how much they use graphics (I feel pretty sure that they will have the usual ones -- a brain map showing the hypothalamus; a chart of differences between CH and migraine; some kind of symptom list), or how much you might find there that you could treat graphically. Finally, there is some amazing artwork illustrating the experience of having a CH attack or being a person with CH. I have seen that in various places, but can't say where you might find it (maybe it will also come up from a Google image search).