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This thread is about a year old but I figured I would drop in my own 2 cents. I've had CH since puberty. Occular migraines started when I was around 30 or so. As others have described I have angular prismatic pulsing blind spots that I can see with my eyes closed. These seem to be a problem with my vision (brain) rather than the eyes themselves. I have these rarely when in a cluster cycle but I'll usually experience a few leading up to a cycle. I just now had my first occular issue in over a year (which prompted me to check the forum here and made it a pain to register as I couldn't see half my screen). This means I'm probably set for another cluster cycle this spring. I'll start another thread on that to track this cycle. If it is any use to the OP, these seem to be harmless but I agree they are definitely scary. I've had to pull over when driving and wait them out because I couldn't see the road. Fortunately they tend to not last more than 20 minutes and spread slowly. Today's aura started in the lower left side of my vision and spread to take out most of the left side which then faded to just corners of my vision. 25 minutes and it is almost completely gone. When I'm in a full-blown CH cycle these often include the nausea and the restlessness I get from the headaches but today there was no pain or nausea. Lucky me... I only went legally blind for a half hour. As for causes or triggers I've noticed changes to my sleep patterns and stress seem to bring these on but the primary thing I notice is I get them at work when I've been staring at my monitor too hard for too long. I suspect I'm breathing too shallowly or even unconsciously holding my breath so there could be an oxygen connection. If I ever learn more I'll be sure to share it here.

Thanks both. Ah Pebbles , you got me wrong. I didnt mean such sites promoting snake oil or whatever, I really just meant regular boards on the same topic like this one here. Someone around the globe might have recently discovered something similar like MMs , D3 or whatever. Yes, this will make it onto here at some point if valid but it may take awhile. I am not interested in taking risks either and research is key as you say. Still and at least for additional theoretical input it may be there is new stuff around we haven't heard of (yet) due to a language barrier. As you say it is / will be bits and pieces but why not. Up to everyone themselves to consider if BS or an actual piece of the puzzle

Yeah I just use O2 and energy drinks any more but if a big O works ya who am I to judge. Imitrex makes it worse for me in the long run.

Usually oxygen isn't administered very effectively in emergency room, plus by the time you get there you've missed the time to get on it, which is at the first sign of an attack. With very few exceptions, a proper oxygen setup and technique will abort an attack in something like 10-15 minutes. An energy drink as you're starting the O2 can reduce the abort time. Roughly 15-20 percent of people with CH use welding O2, either because stupid or uncaring doctors don't/won't prescribe it, or just because over the long run it can be a lot cheaper. Check back with us if you decide to go that route. A neurologist who doesn't mention oxygen and prescribes sumatriptan pills is essentially treating you for migraines. What level of verapamil are you taking? During a cycle, many people find that they only get results from something in the 900mg range. Another big difference from migraine treatment. I'm not saying you have migraines, or even that your neurologist thinks you have migraines and not CH; I'm saying that CH, excruciatingly painful as it is, needs to be treated aggressively with the best possible methods, not with a casual "Let's see what happens" approach. The D3 regimen information is in the ClusterBuster Files. Lots and lots of people are certain that it has either prevented or significantly reduced the severity of their attacks.