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Rod H

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Everything posted by Rod H

  1. If I was gonna fly and party like a rock star I would probably take some prednisone with me. Ya I hate it but it keeps the beast away.
  2. Nick sorry your here. If you scroll to the top of the page tap the blue banner and read away. All is not lost. If you truly do have clusters you have found the right place.
  3. Buy a pill splitter....$5... go slow document your diminishing meds so you know for next cycle. Verapamil you don't wanna just stop. Cut your 3 daily pills in half. Lose .5 one day and make a judgment from there. Listen to your body and mind.
  4. Been coming here since 2015 my life is significantly better since I found answers to my ?s
  5. I need guitars all of em
  6. Love all of these tunes but where is Rush 2112?
  7. I've been with the same company for 31 years. I get hit I go home and come right back. I manage a grocery store with 200 employees. It sucks when I'm in cycle but I just have to power thru. Thank God for this place. It has made it alot more bearable. Freud I read most of your posts hang in there.
  8. I have had similar experiences with the same combo of meds. Doesn't stop the cycle for me but definitely helps some cycles.
  9. I always have tinnitus when in cycle. Long before covid was even thought of.
  10. No nitrous is a trigger.
  11. Never surrender to the beast.
  12. Hang in there kat I've been in cycle since April 22nd. If this was easy we wouldn't be here. You got this
  13. Melatonin makes it worse for me and a few others here.
  14. I wouldn't stop the verapamil until 2 weeks after the prednisone. Usually I get hit 1 day after the prednisone taper is over. I would also associate your disconnect with the prednisone and not the verapamil.
  15. Yea it didn't help me after a week I went back to verapamil. Which really hasn't been that great this time around either.
  16. No not on the 1st day but I've had pred stop cycles before.
  17. Great news on the pf nights and new dr. I wouldn't rule out taking the indo if it works it maybe you have a smart Dr. trying to rule out hc. Figure out your o2 it is a life changer. Because when the prednisone stops you may need it if this course doesn't stop your cycle.
  18. Rod H


    Drs. Are like carsalesmen and lawyers. Keep looking till you find one you trust and like. Remind em they work for you. They're people to and if you find one that will listen you got it made. I think alot of patients automatically bow down to a dr just because their a dr. Don't most want to help just be firm remind em you have this shitty disease and you need o2. It's not addictive and has no side effects. It just doesn't make big pharma rich. If that dr won't listen find one that will.
  19. Rod H


    Sorry dehabel I called you sir in another thread. You should get relief today from the prednisone. I prolly would wait until your done with that before starting the emgality. Melatonin is sold with the vitamins and the gummy ones are good. I would wait on the depakote as well. If you get o2 you can take alot less meds. And there is no side effects to o2 and it stops most of my clusters in 5 min or so.
  20. Triptans such as imitrex, zomig ,sumatriptan, relpax etc...Will stop the headache your having for now and give you 2 later with over use dehabel. Don't drink the robo either sir.
  21. You need o2 it is a game changer and life saver. Used properly it will change your outlook on clusters.
  22. Dehabel have you tried the prednisone yet? I find it is a good crutch to get some pain free time. It's not gonna stop your cycle but it will buy you some time for the d3 and verapamil kick in. As far as patience goes I'm sorry but your gonna need it the only thing that I've found that is fast acting with this is oxygen and caffeine. And that doesn't stop the cycle either.
  23. Rod H


    Benadryl is proven to help. Just be advised there are some that will come here and say cure. There isn't one ,but you can find ways to make clusters tolerable and life worth living. You will also find someone who can relate with your experiences here. Welcome
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