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Everything posted by ClusterHeadSurvivor

  1. This VLOG is dedicated to Melissa M. Dwyer.https://www.youtube.com/watch?v=qSHxDHYvfWERaising awareness and fund raiser for clusterbusters,Please watch, share, like, SUBSCRIBE and.....donate to get an autograph by a rock star ! All for Cluster Headache Awareness
  2. Moxie, I would never try to Trump your year but know that you are not alone, Your struggles are real and tough. And with all I been through myself. I find myself falling 7x nd getting up 8. It makes you far stronger, far more able to keep moving forward. I pray for you to have pain free days ahead. No matter how hard it gets, always stay positive. Pain Free Wishes
  3. Please subscribe, like and share my VLOG on YouTube. About living in chronic pain positively!




  4. I know this may seem odd. But we have to laugh once in awhile at our cards we are dealt. I have had an attack pretty much everywhere cluster heads have had one....work, home, sex, in public at store.... But I have had some attacks in crazy places in my life, and thought what the heck....share.I cant wait to hear your replies. Ill start..... #1 Jay Lenos Garage #2 inside Johnny Cash's Last Limousine #3 Every concert I ever been too, standing 2 ft from Axel Rose and he looked at me like WTF.... #4 recovery room from brain surgery
  5. Kris, welcome you are in the right place for a wealth of information. 1st do not despair or give up. You made it this far. Tomorrow is a new day. This site can help you make an informed decision on some different approaches to different types of ways to teat your headaches. 1st. If you have not yet gotten a prescription for oxygen with a non-rebreather mask and regulated at 15 litres per min minimum. Another way is a Gentleman named Batch who has found that his D3 treatment (regimen) is a very effective way, And last alternative treatment. All ideas, are your choice. But have proven to be effective for many of us. Please read, read and read and then read some more. Don't hesitate to ask, a search bar is a valuable tool, as well as the main page, can guide you Pain-Free Wishes
  6. So after a solid honest month. I had to stop taking it. Wreaked havoc on my IBS-d. A friend with IBS-d tried it too and got the gut rot and frequent washroom visits too. Ill stick to the flower dang I had high hopes. no pun intended. lol
  7. I dont know if this helps.... I go for my second round of botox next week on 20th. Its $1000 here....except its like 31 or so needles in my head not jaw... Here is what they told me. 1st time injected, people have 30% chance of pain relief. 2nd time injected people have 50% success with pain relief. But after 2nd dose, if no help. Don't bother as it wont work, For me. my 1st round....my migraines got way worse. Could be a fluke but they did. Im having botox for severe chronic migraines. Im not sensitive to chew but extremely sensitive to smells, high pitch noises (not bass sounds but high tones).
  8. I believe we are all equals here. No one is better or worse. If you have survived one attack, it's one too many. I don't think anyone's resume is better than anyone else's in my opinion. Chronic or episodic. We as survivors have all had some very low dark days where we didn't want to be here. This thread isn't about the dark days because no one usually wants to talk about that. Id like to start a positive post thread OR positive tips and thoughts on what got us through it. What got us through those dark days, why we chose to fight another day. I'm doing this thread in memory of those who lost their fight. I don't really want to emphasize on the bad. But the positive. Perhaps some of us out there are going through some really dark days, months and years right now and could use some encouraging words to uplift them and know that they can keep moving forward. Let me start....and let's keep this going....and PLEASE be respectful of those with faith or without. It is what helped that person so let's not be judgemental. Speak wiith love. ***************************************************************************************************************************************************************************************************************************** Tomorrow is a new day, always remain positive no matter how bad it is, you have survived this far ! You are a warrior, a survivor and you matter. You are important, Have value and I am so glad you are here ~Tom T~ *****************************************************************************************************************************************************************************************************************************
  9. Hope everyone has a great conference. Im there in spirit, love and pain free wishes. (hoping someone can get me some extra large bracelets and 2xl shirts.) Ill be happy to pay. Pain Free Wishes
  10. Hey if ANYONE is selling bracelets, t shirts etc. I would love to buy some since I am unable to attend. I am a big guy so EXTRA Large Bracelets and 2 XL (XXL) t shirts if made by GILDAN will fit me. I had some bracelets from Jenny, But I keep snapping them because my size. I am more than happy to pay shipping etc as I am in London Ont Canada. Thank you very much. PM here please and thank you kindly.
  11. I got sick too. I also took almost 2 hrs to feel anything. Finally after a month I got it shaved to 30 min...now its 5-10 min....everyone is different. Dont give up
  12. I just started using Mettrum Yellow Hybrid 20% CBD 1%THC. My migraines have cut back a hair but I'm not sold on the idea just yet. Could just be a fluke. It has wreaked a bit of havoc on my IBS-d but the licenced producer I get it from said people with IBS can be sensitive. It says to try to increase the dose until you feel comfortable. I am using a min dose because everytime I increase it my insides go south. I also smoke Cannabis daily for pain. High CBD, equal THC. like 9 % each. For me, indica makes migraines worse. Sativa helps me more. Every one is different. Everyone reacts differently. You are your best patients advice. I use some extremely harsh pharma meds for another head pain I have. It seems to help the side effects of that medication. I have a license for medical marijuana here in Ontario Canada. Until I got it I had never smoked before. Dont give up.
  13. No comments or views on a movie with cluster headaches mentioned? When was the last time you seen Cluster Headaches talked about in a movie?
  14. Trippin' With Leigh documentary is finally here. And its FREE Please watch, share and personally thank Leigh Macinnis for his support. Here is my blog and you can click on the link after reading it to watch it. ​ http://clusterheadsurvivor.blogspot.ca/2016/12/tripping-with-leigh-documentary-on.html I encourage you to thank Leigh for supporting all of us.
  15. Trippin' With Leigh documentary is finally here. And its FREE Please watch, share and personally thank Leigh Macinnis for his support. Here is my blog and you can click on the link after reading it to watch it. http://clusterheadsurvivor.blogspot.ca/2016/12/tripping-with-leigh-documentary-on.html I encourage you to thank Leigh for supporting all of us.
  16. I started writing a book....and it evolved to my blog.... good luck
  17. After a long wait to Season 10......which started today on Netflx Season 10, Episode 2. Greasy office scene.... Tried to upload pics etc. Says file to big. Go watch. and for the record. No one on the set has CH that I know of. They did this for me which I asked for them to do for us.
  18. hard for em to answer since I already had surgery that didnt work
  19. Well I busted today. I waited on the Cesamet. In fact I take it in 20 min....takes about 5 hours to kick in so ill be asleep. Hope it works, can barely sit let alone walk. Not complaining. It is what it is
  20. Thanks guys...I do appreciate all the positive educated feedback. I think I am going wait. Because the cesamet will be ongoing everyday. I think after 2 months of using it everyday I will know what to expect and how to feel. Because I have only taken it once it really hasn't had a chance to get into my system fully. I am also paranoid Ill be super high.... lol again, thank you
  21. without a shadow of a doubt it affects my migraines 110%. I could be the weatherman and predict weather with my head....LOL
  22. So my 2 month Bust date is Friday. Cesamet is a synthetic form of marijuana. I was prescribed it for mirgaines, chronic back pain(sciatica,L3/4/5 discs)arthritis, sleep and anxiety. Question....Will Cesamet affect my busting? I dont think its a blocker. But will it highten the busting?? Or highten the Cesamet? Should I wait 2 days to Bust first and then do cesamet? Sure but I am in a ton of pain. I cant stand more than 3-5 min, I have tried the Cesamet once. It was a body buzz if anything. If you have experience with both. Id love to hear. Thank you
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