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didgens last won the day on August 6 2020

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  1. Thanks all ,,, Since were going to alaska i know the consumption of fish will be HUGE !! good to see you again batch ,, ive been away for quite a while, i will pack the vitamins. He doenst want to go the O's route so we'll have to make due ,, i feel he is very close to the end of cycle he had a minor one the other morning. will pack away some 5 hour energy ,, also i bought some GU ,, not sure if your all familiar,, its like frosting with Caffine ,, I used it quite a bit on Mountaineering and backpacking trips ..
  2. Hi All ,, been some time now ,, mostly looking at posts on facebook,, I see some of you here over there. We are getting ready to go to Alaska next week and my son is having his cluster phase,, im hoping we will be mostly done by the time we leave as we are not taking any O's or abortives ,, i know that sounds crazy to some here but he knows how to deal with them without anything at times .. its been recommended that i grab some 5 hour energies for him to take along,, any other suggestions ? thanks
  3. figured it was genetic since great grandpa had migrines and my sons Father had SUNCT syndrome..
  4. proves my point ,, and what my gut told me long ago .. i never let my son used the imitrex injections ,, hes 1 headache every 2 - 3 days during cluster phase
  5. In the end of it all you are in charge of you ,, follow your gut ,, if you dont like what happens then take their advice. My son is also episodic ,, and although the doc prescribed imitrex injections he has never used one. He knows they are there ,, and im afraid if we go down that rabbit hole it will make things ultimately worse or trigger chronic CH.. no data to support this ,, just a gut "MOMS" feeling, He uses O's (oxygen) to abort ,, and when not available a hot shower or walking around. I have seen him get some pretty bad ones early on ,,but since treating with O's and recognizing one comming on and downing a Red Bull, Coffee or similar he manages them pretty well. So do you you think is best/safest for you.
  6. http://www.cnn.com/2016/12/01/health/magic-mushrooms-cancer-patients/index.html
  7. Its the only thing that I can routinely point my finger at. as soon as the temperatures swing hes hit. and its usually from a colder more drizzly temperature to a hotter one. last week we were in the 60's then a couple days of almost 100 ,, he was hit a few days before the heat. Same thing the last couple days ,, and we are headed for 109 on Monday. Don't know if this helps anyone but you might keep an eye.
  8. pretty sure its a gene pool thing .. my sons great grandfather had migraines ,, my husband had SUNCT syndrome and now he has CH. and he looks mostly like his GG.
  9. thank you spiny ! Also a beer (for the first time) affected him last night as well. He has never had alcohol as a trigger before now.
  10. Thank you ! yes of all the antihistamines Benadryl is the only one that seems to help him. I picked some up for him after reading somewhere that others benefited from it as well. I think the swelling that causes the nerve pressure can be a result of allergies or virus' so maybe the Benadryl helps in either case.
  11. Thanks all (yes chf ,, everything is over, lost my mom in September, my husband in December) ,, I have also noticed that my son gets them at the beginning of a virus as well,, if a cold of some kind has invaded him the first thing he gets sometimes is the CH ,, swelling of something ,, I dunno anymore, will get back to doing more research after a while. miss you guys ..
  12. Hi all ,, been gone for some time now. (life was hell). Anyway I can definitively say without a doubt that a FOR SURE trigger is barometric pressure change.. I have been observing this for some time now,, and this is a solid trigger for my son. not sure what to do with that info. but now I have time to research it a bit more.
  13. this kind of knot is not uncommon. my son will often have me work it out for him. I don't think its the cause ,, more the effect.
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