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BluesFan85 last won the day on June 12 2017

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  1. Okay so I started to see a neurologist yesterday and I'm going to be seeing her about this from now on. So I went yesterday and told her what's she said it's obvious I have cluster headaches and it was nice to talk to someone who seemed to understand what I'm talking about. Anyway she wanted me to try Indomethacin and see if that helps. From what I understand I maybe wrong I don't know but, does this drug actually help with CH's? Has anyone taken this before? She wants me to try it out and call her on Tuesday to let her know if it helps at all and if not we'll try something else. I don't
  2. I just wanted to say how incredibly impressed I am with this stuff!!! It's amazing absolutely amazing!!! It doesn't taste bad at all really and literally works within like 10-15 minutes. If you haven't tried it at all I might suggest you do. Only problem I have know is what do I do when I run out? I gotta figure out my insurance a little more and find out exactly how much of this stuff I can get. I wish everyone a PF night and may we all just wake up and be in remission for the rest of out lives!!!
  3. What's an expiration date? Yeah I'm never to worried about something that's expired as long as it's not that old. So I've been hesitant haven't used any of the sprays till now. Early early this morning I got an brutal attack and early afternoon. I feel one coming on now so I'm trying the nasal spray, god I hope this works. Been about 5 minutes since I took it I'm hoping in 10-15 minutes I'm completely okay
  4. Okay thanks guys. Yeah insurance took care of it and I got the spray it cost nothing. I'm going to fill as many scripts as possible so I can stock pile everything
  5. So I just got prescribed this and I'm also taking Verapamil. In the info that comes with the Nasal spray it says don't take if your taking other migraine medications. Can I not take this while I'm on verapamil? I'm pretty sure I'm okay but I just want some reassurance. Anyone else taking this know?
  6. Hey man I understand where your coming from. I also am addicted to heroin. I've been clean now for about 2 years I'm 31 years old. I used drugs all high school I did everything imaginable on top of smoking an ounce or more of dank a week. Anyways when I started getting the clusters really bad at 18 that's when I tried using heroin a lot for the pain not knowing it wasn't going to help. Get help man. I've been to jail many times and prison as well. You ever have a cluster headache while your on a prison transport feet handcuffed to the floor and hands cuffed in front of you? If you want
  7. Okay so I have basically been Chronic a little more then a year now but I've been able to handle the hits exceptionally well and the Verapamil seemed to be working even though I was only taking 100mg 2X/day. I was getting just like 5 or 6's and they'd last for like 20 minutes or a little more and go away, I was always able to fight through them. So the last months though I've been getting hit with the straight 10's you all know what I'm talking about. They've been getting closer and closer together and longer in duration over those months to where I am now. I can't sleep if I fall asleep I
  8. Hey yeah I have been diagnosed by a neurologist at age 18. I do have oxygen and know how to use it but it honestly doesn't work for me, my tank is actually empty I gotta get a refill just haven't jumped on it since like I said it wasn't working it just prolonged the shadow part kind of and would hit eventually. I'm currently taking Verapamil ER 100mg 3x/day which I thought was working but now I don't know. I've taken Lithium, tope something, maxalt, imitrex, predisone, vitamains (d3), and some I can't remember it's been a lot of years. Besides the last 2 years I was episodic, around the 4th
  9. Yeah are you talking about Sinol-M? The all-natural nasal spray? Cause if your talking about this and your cured because of this stuff then your a one in a million. It provided little relief most of the time and sometimes it helped decently. But overall it's not going to cure you Active Ingredients: Capsicum 4X (capsaicin) Inactive Ingredients: Purified Water, Eucalyptus Oil, Aloe Vera Extract, Rosemary Extract, Sea Salt, Vitamin C, Benzalkonium Chloride
  10. Nicole I'm so so sorry for you I really am. Yeah the pain from these things is unlike anything anyone will ever experience except for people like us who have the beast. It's hard for people to even fathom the kind of pain were talking about. Another thing you should get used to is from other people hearing about what you have, "oh you have headaches I've had a bad migraine before to I know how you feel you just gotta suck it up." Yeah that's not a cluster headache. Everyone says get O2 I honestly found it didn't really work good for me at all. Coping with these things is hard let me tell
  11. I'd be willing to talk to you but I live in Chicago. Been suffering for 17 years and the last year I haven't had more then 2 days with an attack. I've used LSD and Psilocybin but I haven't been able to have a steady supply so I can actual see if it's working or not. Right now I'm getting hit so bad I don't know how much more pain I can take. I can't work that's impossible I honestly don't know what I'm gonna do. I'm gonna end up being some homeless guy walking back and forth under my bridge rocking my head back and forth crying till its over. It's a real depressing thought. These things
  12. So for some reason I can't lay down and try to go to sleep, because if I do I automatically wake up within 30 to 45 minutes and get a attack about 15 minutes after waking. This has repeated over 12 times since midnight last night. I don't get 12 attacks in a day that's just insane. It's happened before, but not more then 3 days in a week like this week. Anyways, after about 4pm and the 12th attack I couldn't handle another I was wiped out that last one was super intense. So I've just been walking around and trying to keep busy and moving. If I sit down or lay down I can feel the shadow s
  13. Hi my name is Jacob I'm 31 been suffering since 14 and it completely ruined my life at 18. For the last 2 years I pretty much haven't been PF ever, maybe a few days at the longest. I was episodic for the whole time until the last 2 years and now I know I'm chronic. I've taken pretty much everything and nothing works. Since Sunday night I've been getting a hit about a 7-8 every time lasts about 45 minutes and then about an hour and a half later it starts again. So I've been getting like 12 hits a day now for the last 3 days and I'm just distraught. I just want to go to sleep and not wake
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