Hello there. I can't tell you how happy I am to have stumbled on this site. I have to say that as I logged on I was in the middle of my first ever experience with full panic. I am SO not that type of person. But, in my 50 years I have never been through pain like I've had since December 2012. Without warning or injury, I developed pain on the Rt side of my head that just never quits. The Rt side of my face is unbelievably painful and my eye feels like someone has poked a cattleprod in and turned it. So, as I face this day in and day out, I do my best to be a good mom to 2 teens and wife to my husband of 28 years. The panic I speak of came as I wandered around the house, in pain and missing my husband more than I have ever missed anything in my life. I haven't experienced panic before, but I did today...and as I read through some of the panel ideas for easing the pain, I found a couple of ideas I hadn't tried...and they helped!
Yesterday was a tough day and I truly appreciated my husband sitting quietly while the Dr's poked and prodded me yet again. I'd waited 3 months for the specialist appointment and really, really hoped to get some answers about the severe pain plaguing my generally super healthy and fit body. But, the neuro-opthamology team informed me that the MRI's, visual tests and other testing had effectively ruled out anything except cluster headache. They gave no solutions, suggestions or advice...just the simple statement that "you have a headache, not MS or cancer."
After a sad/restless/bewildered and sleepless night I had to put on the my "it'll be okay" face and drive my 17year old daughter and husband to the start of their 7 day bicycle touring trip . I knew how excited they both were and didn't want them to see my sadness, but it really set in when I returned home alone to face the empty house, the pain and the realization that no doctor can fix this. I have never felt so truly alone.
As I struggled to calm myself down, breathe and get the pain calmed down, I happened upon this site...I am grateful beyond words.
I have alot to learn and I believe this is a great place to start...
It is a relief just to see that there are others dealing with this...
Ann