heilette

I think mine started 10yrs ago as episodic but without the pain in the eye. I had 3episodes of a very sensitive skin on my left temple and the scalp above my eye that stayed for 3 months and was very relived every time it was gone! Never thought of going to a doctor cause there was no real pain, just very tender! Now I've learned it is called 'cutaneous allodynia'. In beginning 2009 I went for an eye test, but the optometrist said there was something wrong and asked if I had sugar problems, but nothing was wrong with my sugar! In July 2009 I stopped using alcohol and then in December 2009 the 'sinus' problems started! First one a week during the night, then two nights a week, and then in the end four to five a night, and only then was diagnosed by a neurologist with CH. The prednisone and verapamil he gave me did help very little and with it I had real headaches, I see CH as a face pain and not a headache. Then I decided I rather live with only the CH as with that headaches too! After that it spread to day times also! Was a wreck then, very near to suicide!!! But tried the licorice and it saved my life! It did not take it away but made it much better, and I think calmed me down to being able to think again. After the second successful dose of vitamins I have at least 2 relatively pain free days a week, but I think it is working! I have tried the RC seeds 3 times, but 3days after I took it, it was hell, and after that very little relieve. Now I'm harvesting some MG seeds along my jogging route, in case it is perhaps necessary in the future! But like moxie-girl I think it has a lot to do with hormones! I was entering menopause at that stage! h

didgens I think he has CH get him that O2! h

didgens My personal experience with CH is that doctors don't know a lot of it, including me! In my occupation I see a lot of people with it, now that I have it myself, but they don't believe me, they will rather go back to the medical doctor for medicine that doesn't really work, not knowing the answer to our problem yet! The symptoms are so close related to an allergic reaction, for pollen, what ever, that I all ways thought it was that time of the year!, but since it is chronic the last 2+ yrs, I think it is something else! Maybe inherited? Love your support for your family! h

Sorry! Sometimes I can not wait, and some times everything is to quick! Sometimes I can remember, and sometimes not! heilette

Ting I love this room!!! heilette

Ting I love this room!!! heilette

Hi all Took the m-vits 8grams fresh first time two weeks ago, but did not read enough, and it had no effect that I could feel. Took it again Thursday, .9grams dry with the tea, and what an amazing experience I had, only when I closed my eyes! It was the most wonderful colors and forms in 3d I ever saw in my life! Was woken after 1hrs sleep, like normal, but this time, with a terrible nightmare!! And 5min later I had the CH, drank coffee and O2 and then sleep was gone, afraid of the nightmare returning! Yesterday I had the most PF day ever! Today I felt "it" happening, hot flash and heavy breathing, but no pain!!! Just telling you as a new user of m-vits! Pain-free days to all h

Thanks Ting Here in South Africa where have a lot of sun, especially now, it is very hot! But CH steals energy!! You are sooo wright!!! Heilette

Hi Tingeling! This sounds very interesting! At what time of the day do you have the treatment and for how long? 12 min? Missed you! heilette

Mystina Missed your post, and just last night I wondered what happened to you and tingeling. You both were such good support for me, without knowing it, when I came on this site in August last year! Still chronic here too! Hope your cats give you a lot of pleasure!! heilette

Red Dog Tried the seeds 45 from TP had 3 floaters, used 42, just like you without the lime juice, but grinded it in a spice grinder, 10 days ago. Had heavy slap backs that night and the next day, but a pain-free next day!! I had only two of that "spikes" After that the rest of the week was like normal pain! As you, I can also only try it on weekends cause of the slap backs and working! Took the second dose last Friday, had 4 floaters, upped it to 43, bad slap backs again, drank some strong coffee at 11:30pm, was wide awake the rest of the night without pain!! Had some obligations the next day, that I knew had bad triggers for me, had two more bad days!! And then Monday and today until 3:30pm, no pain, no shadow!! This time no spikes! But I know it is back to old way again! But it seems the pain free time is increasing! Hope-fully after the third time this coming Friday it will be even longer!! Luckily melatonin helps me through the nights and coffee and heavy concentration through the day!! My first growing M-vit showed it's head today!! Will try it when I have enough!! Good luck to you with the seeds and I hope you have a farm going!! heilette

Poli From where did you order the seeds in Netherland? I ordered me some from Transplants on the 20th of Oct, but still waiting for it to arrive Now I ordered some cubensis grow-kits from Elephantos in Netherland, they don't have RC seeds that I could find. That I must still grow, but which ever is first I shall try. heilette

Thanks everybody The information you gave was very helpful!! CHfather I don't use the licorice so often anymore, only for one day, sometimes, when I'm very depressed, it puts me in a good mood and give me guts to go on :-/ Still waiting for my seeds, Saturday will be two weeks since the order went through, will get it soon! heilette

Hi everybody Does somebody have any information about the thyroid hormone T4 and low temperatures and if there is a connection with CH? Took my temperature after having a mild CH it was only 36 degrees C :-? www.wtsmed.com The symptoms sound so the same as mine? heilette

spiny I think I must do a bit of testosterone treatment as a woman? If I grow a beard and the CH is gone, what the heck :D heilette

cludster I am the one with the nose clip! Smell triggers are very high for me, old ladies heavy perfume, is a special one, I suppose it is oil based because it clings to everything! Lately I find banknotes the same offending smell : Luckily I only have to count money once a week, doesn't sound good for business,though heilette

Thanks Jeff A true clusterhead I am! I envy you all because I can not use the seeds or shrooms because I have Raynauds syndrome. But out of desperation I did go for the arterial cauterization , but I thought I let you know that it did not help for my CH. It seems it is episodic in chronic, but there are bad episodic times twice a month. I think it has something to do with my hormones because I am in menopause. I am on no medication but oxygen coffee and melatonin and I am still surviving. I had bad times of the CH making me so depressed but I now using the pain in meditation to do other things. I do have a very bad "employer" she doent allways believe my pains! I have my own business!! Perhaps I must try the Shrooms and see what it does to my raynauds but as I read Dann"s replys it does not work for him anymore????? heilette

Anybody had arterial cauterization? Did it help? heilette

I suppose it is okay as long as you go with the dossage but I am not in Finland. I am still using it now and then if really needed. I read the book Les suggested (When The Body Says No) ,what an amazing eye opener. I am a bit "numb" about my past and now made an appointment for psychotherapy to help me, because I believe our problem came from repressed emotions! heilette

yes i am in my 4th week now. i only use it now if really necessary. i had the most wonderful pain free time the last 3 weeks. i did found a few sure triggers in that time like my perfume, mowing the lawn, second hand smoking. the first time i tried it it didnt really work but i was on HRT. this time i stopped the HRT a week before i started the licorice and i used vit B5 like Les said. i did start working again on monday and i do find i am triggered more so its not like if it is gone. i had my first beer in 2 months last night and slept like a baby. i think it helps but you must not be on any other medication! heilette

Thanks Ricardo I never got the delirium tremens thing. Perhaps I must first try the Hops on its own. Thanks CHfather I think the diagnose is correct. The HA woke me up at night 1 1/2 hours after going to bed, eyelid dropping and red, nose blocked on right side pain behind eye and marching the kitchenfloor for 30min then the pain was gone. Later 3 attacks per night. After the verapamil everything was worse my whole head had this "cold sensation/shadow" all the time. O2 only worked for the first 2attacks not the rest but then it was morning again and the coffee helped. The imitrex nasal is still in its packet havent tried it after the side-effects of the verapamil. Was on the verapamil when first tried the D3. Have tried the RedBul but my tummy doesnt "like" it I rather stay with the coffee. I followed les doses it didnt have an effect on my raynauds. read about raynauds in the warning for busting, never knew why my fingers go white but making it warm in hot water makes it go away. Now I am so PF I dont know what to do my whole idea was to stop drinking 2yrs ago!! Thanks heilette

Hi all thanks for the support you gave me! Ricardo said something about alcohol as NMDA receptor antagonist. My CH started 2yrs ago cronic since then was only diagnosed in June was put on prednisone and verapamil it didnt help. Dr said then I am "snookered" nothing will help! Got myself some O2 and drank coffee. Tried D3etc didnt help.Tried licorice, it did change everything night attacks stopped and shifted to daytime but what a nice good mood! It still has an effect on me for bad or worse I am so darn honest now and I can scream of it! Last teusday my husband mentioned my CH to a GP and he said it was something I stopped or started doing. 2yrs ago I stopped drinking beer. Teusday evening I drank beer again and since then no night HA again still get shadows during the day but nothing like the past. Read it has to do with delirium tremens that causes an "adrenergic storm" and the treatment is diazepam. Today I went to that GP but he wants to treat me with amitriptyline that is a serotinin-norepinephrine reuptake inhibitor. What do you clever guys think? Was on the point to order mushrooms but got Rynauds disease was scared and dont have green fingers! Painfree days to you all!! heilette